Cheers to raising $6,000! Read about the annual Brewfest!
Posted on April 3, 2018
Posted on April 3, 2018
Posted on March 30, 2018
Written by Kimberly Powell Beer is hard work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries opening each year. Rachel seeing this trend seized the opportunity for the NFXF Greater Atlanta Chapter to hop along with it.
by Tara Jabbari
Posted on March 22, 2018
In February, the friends in Woodbridge, NJ raised over $300 for Fragile X at a bowling fundraiser and family event. It was organized by a high school sophomore, Vanshi Shah, in honor of her younger brother, Darsh, who has Fragile X syndrome. An estimated 80 people attended. We thank Vanshi for organizing and the attendees
Posted on January 12, 2018
Posted on November 10, 2017
Posted on November 9, 2017
Community / Community Support Network / Northern Arizona / Phoenix
Posted on October 26, 2017
The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin with the NFXF X or a Fragile X image of your choosing. You can download stencils of varying sizes (PDF), make
Posted on October 24, 2017
Posted on October 23, 2017
Posted on October 2, 2017
James Colburn was born with Fragile X syndrome. At 26, he is a child at heart who finds joy in the smallest things and uses his gift of comedic timing to inspire those around him. James is living proof there is love and laughter in the face of autism and Fragile X.
Fragile X got some mainstream exposure on Friday’s episode of General Hospital. One of the main characters, Samantha McCall, talks with her estranged adoptive dad. Trying to reconnect with his daughter, Samantha’s Dad mentions that he’s been, “doing some research on the genetic disorder that her brother Danny was born with, Fragile X syndrome.” He goes
Yes, that’s correct Fragile X syndrome was mentioned when Mike asked for “Fragile for $400” on Thursday nights episode of Jeopardy.
Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in Arizona to raise awareness and money for Fragile X. Not only did she want to know why, she was adamant that