The Family Reunion You Want to Go To

By |2021-12-09T11:21:16-05:00Mar 6, 2020|Community, International Fragile X Conference|

Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.

Kara and Steve Frech are Standing Up to Fragile X

By |2018-12-27T09:53:24-05:00Dec 27, 2018|Community|

Kara and Steve Frech received the diagnosis that both of their sons inherited Fragile X Syndrome in 2006. Kara and her mother attended their first NFXF International Fragile X Conference in St. Louis, MO. Filled with information, Kara integrated and applied that knowledge into successful strategies for each of her sons. The National Fragile X Foundation has continued to provide the most up to date information and education to help with daily living.

Fragile X Pumpkin Carving Contest

By |2017-10-26T20:39:07-04:00Oct 26, 2017|Community|

The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin [...]

A Fragile X Question on Jeopardy!

By |2013-10-24T18:53:19-04:00Oct 24, 2013|Community, Video|

Yes, that's correct Fragile X syndrome was mentioned when Mike asked for "Fragile for $400" on Thursday nights episode of Jeopardy.

Memories of Joan Canel

By |2013-04-17T09:26:22-04:00Apr 17, 2013|Community|

Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in [...]

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