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The Family Reunion You Want to Go To

Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.

By |2020-03-26T11:39:59-04:00Mar 6, 2020|Community, International Fragile X Conference|Comments Off on The Family Reunion You Want to Go To

Kara and Steve Frech are Standing Up to Fragile X

Kara and Steve Frech received the diagnosis that both of their sons inherited Fragile X Syndrome in 2006. Kara and her mother attended their first NFXF International Fragile X Conference in St. Louis, MO. Filled with information, Kara integrated and applied that knowledge into successful strategies for each of her sons. The National Fragile X Foundation has continued to provide the most up to date information and education to help with daily living.

By |2018-12-27T09:53:24-05:00Dec 27, 2018|Community|Comments Off on Kara and Steve Frech are Standing Up to Fragile X

Fragile X Pumpkin Carving Contest

The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin ...

By |2017-10-26T20:39:07-04:00Oct 26, 2017|Community|Comments Off on Fragile X Pumpkin Carving Contest
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