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Kara and Steve Frech are Standing Up to Fragile X

Kara and Steve Frech received the diagnosis that both of their sons inherited Fragile X Syndrome in 2006. Kara and her mother attended their first NFXF International Fragile X Conference in St. Louis, MO. Filled with information, Kara integrated and applied that knowledge into successful strategies for each of her sons. The National Fragile X Foundation has continued to provide the most up to date information and education to help with daily living.

By | 2018-12-27T09:53:24+00:00 Dec 27, 2018|Community|Comments Off on Kara and Steve Frech are Standing Up to Fragile X

FX-O-Lantern 2018

The Second Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it, along with an awareness [...]

By | 2018-10-23T15:20:28+00:00 Oct 23, 2018|Awareness Day, Community|Comments Off on FX-O-Lantern 2018

Volunteer Highlight: Rachel DeLine

Written by Kimberly Powell Beer is hard  work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries opening [...]

By | 2018-03-31T13:11:50+00:00 Mar 30, 2018|Community, Fundraising|Comments Off on Volunteer Highlight: Rachel DeLine

Call for Presentations now open for the 16th International Fragile X Conference

We are now accepting submissions for presentations at the 16th International Fragile X Conference to be held July 11-15, 2018 in Cincinnati, Ohio. Please be sure to submit by Tuesday, February 20, 2018 at Midnight [...]

By | 2018-01-22T19:59:45+00:00 Jan 12, 2018|Community, International Fragile X Conference|Comments Off on Call for Presentations now open for the 16th International Fragile X Conference

Fragile X Pumpkin Carving Contest

The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin [...]

By | 2017-10-26T20:39:07+00:00 Oct 26, 2017|Community|Comments Off on Fragile X Pumpkin Carving Contest
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