Fragile X Clinics
Fragile X clinics provide medical services (including medication evaluation and consultation) supervised by a physician and supported by the latest medical, educational, and research knowledge available. Multidisciplinary services, such as genetic counseling and occupational, speech, language, and behavioral therapies, are also available either at the clinic or by referral.
Many of the clinics also participate in collaborative research efforts with other Fragile X clinics and professionals. Besides serving families closer to where they live, these clinics also benefit the Fragile X community by sharing knowledge, research, and clinical experiences with one another. This in turn helps the patients whom they serve.
We recommend visiting a Fragile X clinic if you’ve never been to one (or it’s been a while), if you would like more information about Fragile X and your child, if you are having issues with therapies, behavior, or school, or if you’re interested in joining FORWARD — a registry and a clinical database that allows specialty clinics across the U.S. to work together and gather important information about people of all ages with FXS. Some clinics also have active research studies or clinical trials.