Fragile X Clinics

//Fragile X Clinics
Fragile X Clinics 2018-10-17T08:21:34+00:00

Fragile X Clinics

A Fragile X clinic provides individuals and families affected by one or more of the Fragile X conditions with a comprehensive evaluation and treatment recommendations. These are supported by the latest medical, educational, and research knowledge available.

All of the clinics provide medical services (including medication evaluation and consultation) supervised by a medical doctor. Multidisciplinary services and/or referrals, such as occupational therapy, speech and language therapy, behavioral therapy and genetic counseling, are available within the institutions or through referral.

Many of the clinics also participate in collaborative research efforts (see Clinical Trials) with other Fragile X clinics and professionals.

All of the clinics have an emphasis on Fragile X syndrome (FXS) while also providing services and/or referrals for Fragile X-associated tremor/ataxia syndrome (FXTAS) and Fragile X-associated primary ovarian insufficiency (FXPOI).

Also see FXTAS-specific clinics here »

Besides serving families closer to where they live, these clinics also benefit the Fragile X community by sharing knowledge, research, and clinical experience with one another. This in turn helps the patients whom they serve.

Planning Your Fragile X Clinic Visit »

The Fragile X Clinic: What Does it Mean For You? »

City/State Clinic
Sacramento, California UC Davis Health System
Stanford, California Stanford University
Long Beach, California Memorial Miller Children’s and Women’s Hospital Long Beach
Aurora, Colorado Children’s Hospital Colorado
Washington, DC Children’s National Fragile X Clinic
Miami, Florida Mailman Center for Child Development
Atlanta, Georgia Emory University School of Medicine
Chicago, Illinois Rush University Medical Center
Iowa City, Iowa University of Iowa Children’s Hospital
Kansas City, Kansas University of Kansas Medical Center
Louisville, Kentucky Weisskopf Evaluation Center
Baltimore, Maryland Kennedy Krieger Institute
Boston, Massachusetts Boston Children’s Hospital
Worcester, Massachusetts University of Massachusetts Medical School/University of Massachusetts Memorial Health Care
Ann Arbor, Michigan University of Michigan Hospitals and Clinics
Minneapolis, Minnesota University of Minnesota
Morristown, New Jersey Fragile X Center at Atlantic Health System
Staten Island, New York New York State Institute for Basic Research in Developmental Disabilities
New York, New York Seaver Autism Center for Research & Treatment at Mount Sinai
Durham, North Carolina Duke University Medical Center
Cleveland, Ohio Cleveland Clinic Foundation
Cincinnati, Ohio Cincinnati Fragile X Research and Treatment Center
Elwyn, Pennsylvania Elwyn Fragile X Center
Pittsburgh, Pennsylvania Children’s Hospital of Pittsburgh of UPMC
Lewisburg, Pennsylvania Geisinger FX Center
Greenwood, South Carolina Greenwood Genetic Center Fragile X Clinic
Nashville, Tennessee Vanderbilt University Medical Center
Dallas, Texas Children’s Health and UT Southwestern Medical School
Houston, Texas Texas Children’s Hospital