Fragile X Clinical & Research Consortium

The clinics of the Fragile X Clinical & Research Consortium (FXCRC) provide individuals and families affected by one or more of the Fragile X conditions with comprehensive evaluation and treatment recommendations.

Did you visit an FXCRC Fragile X clinic in 2019 or 2020 — either in-person or virtually? 

Pease share your experience by completing our Clinic Evaluation. We periodically conduct these to help clinics improve their care. A few minutes of your time will help you and other families in the future. Thank you.

COMPLETE THE CLINIC EVALUATION

Fragile X clinics provide medical services (including medication evaluation and consultation) supervised by a physician and supported by the latest medical, educational, and research knowledge available. Multidisciplinary services and/or referrals, such as occupational therapy, speech and language therapy, behavioral therapy, and genetic counseling, are available within the institutions or through referral.

Many of the clinics also participate in collaborative research efforts with other Fragile X clinics and professionals. Besides serving families closer to where they live, these clinics also benefit the Fragile X community by sharing knowledge, research, and clinical experience with one another. This in turn helps the patients whom they serve.

Fly With Me Fund

The Fly with Me Fund provides financial assistance for families to travel to a Fragile X member clinic to receive the most appropriate evaluation and treatment services. Applications must be submitted by the medical director or the clinic coordinator of the clinic. When you schedule your appointment, ask to speak to one of them to begin the application process.

Special thanks to the Silver Family for their continuous fundraising efforts that help make this program possible.

Find a Fragile X Clinic

All of the clinics are listed below. Please contact us if you have any questions about the Fragile X clinics. You might also want to read:

The clinics have an emphasis on Fragile X syndrome (FXS) but also provide services and/or referrals for Fragile X-associated tremor/ataxia syndrome (FXTAS) and Fragile X-associated primary ovarian insufficiency (FXPOI). In addition to the clinics listed below, the following are also available:

The clinics are sorted by state (Address column) by default. To sort by another column, click on the column name.

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