The Fragile X Clinical & Research Consortium

Fragile X Clinics

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Fragile X clinics provide medical services (including medication evaluations and consultations) supervised by a physician and supported by the latest medical, educational, and research knowledge available. Multidisciplinary services, such as genetic counseling and occupational, speech, language, and behavioral therapies, are also available either at the clinic or by referral.

The National Fragile X Foundation recommends visiting a Fragile X clinic if:

  • You’ve never been to one (or it’s been a while).
  • You would like more information about Fragile X and your child.
  • You’re having issues with therapies, behavior, or school.

You might also be interested in joining a research project, such as the FORWARD Registry & Database — a registry and a clinical database that gathers important information about people of all ages with FXS. (See the blue map markers for a participating clinic.) Some clinics also have active research studies or clinical trials.

What Does a Fragile X Clinic Mean for You?
Why a Fragile X clinic might be exactly what you were looking for.

Planning Your Fragile X Clinic Visit
Learn more about preparing for your visit, including checklists to keep you on track.

Clinical Trials From Start to Finish
Learn more about how clinical trials and research work, plus answers to your most pressing questions.

Fly With Me Fund
Financial assistance for families to travel to a Fragile X member clinic of the FXCRC.

Have you visited an FXCRC Fragile X clinic in 2019 or 2020 — either in-person or virtually?

Take the Clinic Evaluation Survey

Find a Fragile X Clinic

The map shows all current U.S. Fragile X clinics. We also have available:

Green clinic map marker= Fragile X Clinic

FORWARD clinic map marker= Fragile X Clinic + participates in the FORWARD Registry & Database

By default, the map shows all U.S. Fragile X clinics. Click or tap an icon on the map to view further details, or choose from the listings below the map. Each column can be sorted (ascending/descending).

View by state: Use the dropdown menu above the map to choose a state. Once chosen, the list of clinics in that state will appear below the map. If you’re looking for a state that isn’t in the dropdown list, that means there are currently no clinics in that state. (Try a nearby state to find the closest clinic to you.)

StateTitleDescription

More About the FXCRC

The Fragile X Clinical and Research Consortium (FXCRC) was created in 2006 by the National Fragile X Foundation in response to the growing needs of families whose members have one of the three identified Fragile X conditions — Fragile X syndrome (FXS), Fragile X-associated primary ovarian insufficiency (FXPOI), and Fragile X-associated tremor/ataxia syndrome (FXTAS).

The FXCRC heads both the clinics and support groups, and in 2011 began drafting the Fragile X treatment and intervention recommendations, also known as consensus documents.

Be a part of the solution.

Learn more about the INTERNATIONAL FRAGILE X PREMUTATION REGISTRY and join individuals with the premutation and their families to help advance — and encourage — deeper understanding and research into the premutation condition.

LEARN MORE
International Fragile X Premutation Registry
International Fragile X Premutation Registry

Be a part of the solution.

Learn more about the International Fragile X Premutation Registry and join individuals with the premutation and their families to help advance — and encourage — deeper understanding and research into the premutation condition.

LEARN MORE
Questions?

If you have questions we’d love to hear from you! If this is urgent, you may also call us, otherwise we will reply by email as soon as possible.

Email or call

Last Updated: 10/11/2021