The Fragile X Clinical & Research Consortium
The Fragile X Clinical and Research Consortium (FXCRC) was created in 2006 by the National Fragile X Foundation in response to the growing needs of families whose members have one of the three identified Fragile X conditions. The FXCRC heads both the clinics and support groups, and in 2011 began drafting the Fragile X treatment and intervention recommendations, also known as consensus documents.
Fragile X Clinics
Fragile X clinics provide medical services (including medication evaluations and consultations) supervised by a physician and supported by the latest medical, educational, and research knowledge available. Multidisciplinary services, such as genetic counseling and occupational, speech, language, and behavioral therapies, are also available either at the clinic or by referral.
The National Fragile X Foundation recommends visiting a Fragile X clinic if:
- You’ve never been to one (or it’s been a while).
- You would like more information about Fragile X and your child.
- You’re having issues with therapies, behavior, or school.
You might also be interested in joining a research project, such as the FORWARD Registry & Database — a registry and a clinical database that gathers important information about people of all ages with FXS. (See the blue map markers for a participating clinic.) Some clinics also have active research studies or clinical trials.
Clinical Trials From Start to Finish
Learn more about how clinical trials and research work, plus answers to your most pressing questions.
Fly With Me Fund
Financial assistance for families to travel to a Fragile X member clinic of the FXCRC.
Locate a Fragile X Clinic Near You
Find a clinic specializing in treating Fragile X syndrome based on your location and ages treated. Note: We also have separate listings for FXTAS-specific and international clinics.
- All clinics treat children and teens up to age 18.
- Some clinics treat up to age 21.
- Some treat all ages.
Each listing includes the ages treated at that location: If you or the person you’re searching for is over 18, you can narrow down the results by choosing one of the filters for AGES 19-21 or AGES 22+
If you have questions or want to share your comments (all feedback is welcome), we’d love to hear from you!
Be a part of the solution.
Learn more about the INTERNATIONAL FRAGILE X PREMUTATION REGISTRY and join individuals with the premutation and their families to help advance — and encourage — deeper understanding and research into the premutation condition.
Be a part of the solution.
Learn more about the International Fragile X Premutation Registry and join individuals with the premutation and their families to help advance — and encourage — deeper understanding and research into the premutation condition.
If you have questions we’d love to hear from you! If this is urgent, you may also call us, otherwise we will reply by email as soon as possible.
Last Updated: 10/6/2022