LEARN MORE ABOUT THE NFXF
The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.
Read about our amazing team, including staff, board of directors, volunteer leaders, and scientific advisors.
We provide audited financial statements, government certifications, independent certifications — we are honored to hold the highest ratings with third-party non-profit certification organizations GuideStar and Charity Navigator) — and an annual impact report based on our audited financial statements.
Learn more about the many programs we have developed toward our mission to serve the Fragile X community.
Donate to the National Fragile X Foundation
Donation options include dedicating your gift in honor, in memory, or in celebration of someone. No matter how you choose to give, your gift will go to work right away.