LEARN MORE ABOUT THE NFXF
The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.
Mission & Vision
The National Fragile X Foundation serves all those living with Fragile X with a focus on Advocacy, Education, Research, and Treatment with Community at the heart of everything we do.
Financials & Impact
We provide audited financial statements, government certifications, and independent certifications — we are honored to hold the highest ratings with third-party non-profit certification organizations GuideStar and Charity Navigator) — and an annual impact report based on our audited financial statements.
Read about our amazing team working behind the scenes.
Learn more about the amazing group of volunteers on our board of directors.
Learn more about our esteemed group of advisors who make up the NFXF Scientific & Clinical Advisory Committee.