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September 2017 October 2017 November 2017

PA: Medical, Behavioral and Educational Interventions for Fragile X

  • September 23 @ 8:30 AM - 4:00 PM UTC-5

The Southeast Pennsylvania Fragile X Community Support Network group would like to invite you to participate in this incredible educational event! We are bringing together top professionals from across the country for this one-day educational seminar. Speakers: Dr. Elizabeth Berry-Kravis, MD, PhD Professor of Pediatrics, Neurological Sciences, and Biochemistry at Rush University Medical Center in Chicago Dr. Karen Riley, PhD Dean for the Morgridge College of Education at the University of Denver Brenda Finucane, MS, LGC Associate Director at Geisinger’s Autism and Developmental

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MO: 12th Annual Fragile X Mouse Races

  • September 23 @ 6:30 PM - 9:00 PM UTC-6

The 12th Annual Fragile X Mouse Races are here! Join us for a great time featuring fun, games, food and drinks! Featuring: A walking taco bar Beer and wine Heads and Tails The main event: Mouse Races! Make sure you and your friends can join by reserving a table! Sponsorships are available until September 6.

$25
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Webinar: Autism Spectrum Disorder in Fragile X Syndrome

  • September 28 @ 5:00 PM - 6:00 PM UTC-5

ASD in FXS; Co-Occurring Conditions and Current Treatment Featuring Special Guest Walter E. Kaufmann, MD, Greenwood Genetic Center, Boston Children’s Hospital Description Numerous small and parent reported studies have shown that a considerable percentage of individuals with FXS also carry a diagnosis of autism spectrum disorder (ASD). Individuals with a dual diagnosis of FXS and ASD were reported to show greater cognitive and behavioral impairment. The first large-scale study looking at ASD in FXS was conducted using FORWARD data. With

Free
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IA: Xtra Special Needs Conference

  • September 30 @ 9:00 AM - 4:00 PM UTC-6

Registration & Hotel Info Click here Registration includes lunch About the Conference Afternoon sessions include information for Iowa and South Dakota waiver services and adult living/working options as well as round table discussions for parents & professionals. This is open to anyone that works or lives with a special needs individual. Please feel free to share with those you feel would be interested. Keynote Speakers: Matt McNiff, PhD and Brenda McNiff EdD Brenda and Matt share a life with two talented

$40
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CA: Latest Trends in Fragile X Conference

  • October 1 @ 1:00 PM - 5:00 PM UTC-8

Join FRAXSOCAL for a half day conference with Dr. Randi Hagerman, M.D. UC Mind Institute and Dr. Molly Losh, Ph.D, Northwestern University There’s more: Join the FRAXSOCAL Board and Dr. Randi Hagerman for a ‘no host’ dinner immediately following the conference at The Refinery at The DoubleTree Hotel. RSVP when you register. Audience: Parents, Caregivers, Teachers, Therapists and other professionals working with those with Fragile X syndrome. Day/Child Care will not be available during this event. Registration Fee: (Includes parking,

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Webinar: Using the ABLE Act and Special Needs Fairness Act

  • October 11 @ 1:00 PM - 2:00 PM UTC-5

Using ABLE Act and Special Needs Fairness Act to Establish Financial Stability and Independence October 11, 2017 10 AM PT | 11 AM MT | 12 PM CT | 1PM ET Featuring Special Guest Patricia E. Kefalas Dudek, Patricia E. Kefalas Dudek & Associates Description This webinar will explain the ABLE Act, describe the rules that apply to them, and the limits to their use. A detailed description of the different state programs and how to determine which option or strategy is

Free
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CT: Fragile X Conference

  • October 21 @ 8:00 AM - 4:30 PM UTC-5

New Approaches to Decreasing Anxiety and Addressing Behavioral Challenges in Fragile X The Fragile X Society of Connecticut Community Support Network group would like to invite you to participate in this incredible educational event! We are bringing together top professionals from across the country for this one-day educational conference. Speakers: Dr. Karen Riley, PhD Jonathan Picker, MBChB, PhD Sharyn Lincoln, MS, CGC Audience: Families Educators Therapists Providers who care for children and adults with Fragile X-associated disorders and autism spectrum

$60
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MO: FX Symposium – Intervention Innovations and the Value of Assessment

  • October 28 @ 9:00 AM - 1:00 PM UTC-6

  This is a free event, but registration is required. Online registration will be open through October 18th – we will accept walk-up registrations the day of the event; however, the availability of printed materials will not be guaranteed after October 18th. A light breakfast and snacks will be provided. About the Speaker Dr. Karen Riley is the Dean and Associate Professor of the University of Denver’s Morgridge College of Education and has been working with individuals affected by Fragile

Free
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CO: Fragile X Fall Conference

  • November 10 @ 8:00 AM - 4:00 PM UTC-7

Save the date, more information is coming soon! Contact Laura Ayres at frontrangeco@fragilex.org for more information or check back to our page soon for more details.

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CA: Family Fun Day Bowling, Billiards, Ping Pong and Foosball

  • November 11 @ 2:00 PM - 5:00 PM UTC-8

Save the Date, more information is coming soon! Contact Jennifer Newsome  at 818-754-4227 info@fraxsocal.org  for more information or check back to our page soon for more details.

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