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Events

  • Understanding the Shionogi EXPERIENCE Trial Findings

    Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation, this webinar will feature Shionogi discussing the recently shared trial results, what is known so far, and what comes next. The webinar will be recorded and made available shortly after […]

  • FX Dadʼs Chat

    There are nine dates between October 2025 and June 2026 in this monthly virtual get-together for dads, hosted by the NFXF Connecticut Chapter. You do not need to be a chapter member — all are welcome! They each run from 7:30 through 10:00 pm (ET), but youʼre welcome to join when you can and stay […]

  • The 2026 20th NFXF International Fragile X Conference

    Louisville Marriot Downtown 280 W. Jefferson St., Louisville, KY, United States

    Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.

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