Fragile X Syndrome & Associated Premutation Conditions Webinars
- Adulthood & Aging
- Adulthood & Estate Planning
- Adulthood & Housing
- Adulthood & Transitioning
- Autism
- Behavior — Includes sensory issues and hyperarousal
- Daily Living — Includes eating, sleep, socialization & relationships, toileting, caregivers, and support strategies
- Female Issues — Includes relationships and executive functioning
- School & Education
- Medications
- Physical & Medical Concerns — Includes mosaicism
- Puberty & Sexuality
Premutation
FXS Adulthood & Aging Webinars
Aging in Fragile X Syndrome — Webinar
Dr. Berry-Kravis presents a one hour Q&A about what we’ve learned from the FORWARD data on aging for individuals living with Fragile X syndrome.
What Weʼve Learned from FORWARD About Aging in Fragile X Syndrome — Webinar
Dr. Elizabeth Berry-Kravis discusses the FORWARD database and its role in understanding problems that face adults living with Fragile X syndrome.
FXS Adulthood & Estate Planning Webinars
Estate Planning: Special Needs Planning for Individuals and Caregivers
Learn how to leave money and other assets for the benefit of a child with special needs without causing the child to lose important public benefits.
Guardianship for Special Needs Individuals and Caregivers — Webinar
Learn about if and when guardianship should be considered and the requirements needed, plus less restrictive alternatives, such as financial and healthcare powers of attorney.
FXS Adulthood & Housing Webinars
Housing Options for Adults With Fragile X Syndrome: Parents Share Their First-Hand Experiences — Webinar
Adult housing options and support services may be limited and difficult to access. A group of parents shared their firsthand experiences supporting their loved one with Fragile X determine a suitable living situation.
Housing Options for Adults With Fragile X Syndrome — Webinar
Adult services may be limited and difficult to access, so how does a parent deal with that nagging question that keeps them up at night: What will happen when I’m gone?
Adult Living Situations and Fragile X — Webinar
As your child gets older, there are many decisions to be made. One of the biggest decisions is determining the best living situation for your young adult.
FXS Adulthood & Transitioning Webinars
Transitioning to Independence in Adulthood: What Helps? What Hurts? — Webinar
This presentation presents research-based information on the factors that promote or hinder the transition to independence of young adults with FXS after completion of high school and formal education.
Fragile X Syndrome Self-Advocates Share Their Challenges and Triumphs
One of the most common questions related to Fragile X is what limitations does a person with Fragile x syndrome have? Meet Allison Cohen, Michael Cohen, Doug Cooper, Aaron Heisel, Samantha Rhodes, Joshua Rocker, Jodi Selinger, Spencer Shelton, and Cassie Stringer.
Transitioning to Independence in Adulthood: What Helps? What Are the Barriers? — Webinar
Our expert panel, Leonard Abbeduto, Jessica Klusek, Julie Lounds Taylor, and Angela John Thurman, present research-based information on the factors that promote and hinder the transition to independence for adults with Fragile X syndrome.
Moving from Pediatrics to Adult Services — Webinar
Dr. Marcia Braden on the difficulties associated with patients with Fragile X syndrome transitioning from a pediatric to an adult care provider.
FXS Autism Webinars
Autism Spectrum Disorder in Fragile X Syndrome: Co-Occurring Conditions and Current Treatment — Webinar
Individuals with a dual diagnosis of Fragile X syndrome and autism have reported greater cognitive and behavioral impairment. With Dr. Walter E. Kaufmann.
Letʼs Talk Fragile X Syndrome, Autism & Behavior — Webinar Replay
Developmental FX joins us to provide insight and advice on Fragile X and its connection to autism and behavior.
FXS Behavior Webinars
See all FXS behavior resources →
Includes sensory and hyperarousal.
Increasing Access to Services for Families of Infants with Fragile X — Webinar Replay
Hear an overview of how the Early Check team integrates telehealth models to provide families with the necessary information, support, surveillance, and intervention.
Common Behaviors and Available Treatments Across the Lifespan — Webinar
Presented by Rebecca Shaffer, learn about the signs of emotion dysregulation in Fragile X syndrome and ways to respond, and practical strategies.
Emotion Dysregulation in Fragile X Syndrome — Webinar
Presented by Rebecca Shaffer, learn about the signs of emotion dysregulation in Fragile X syndrome and ways to respond, and practical strategies.
Expert Panel Discussion on Young Children With FXS — Webinar
Our expert panel discusses the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, behavioral issues, and much much more.
FXS Daily Living Webinars
See all FXS daily living resources →
Includes eating, sleep, socialization & relationships, toileting, caregivers, and support strategies.
Effective Strategies to Promote and Support Social Skills — Presentation
Jayne Dixon-Weber shares top takeaways from Barbara Haas-Givler's conference presentation on effective strategies to promote and support social skills for individuals with Fragile X syndrome.
Increasing Access to Services for Families of Infants with Fragile X — Webinar Replay
Hear an overview of how the Early Check team integrates telehealth models to provide families with the necessary information, support, surveillance, and intervention.
Toilet Training Across the Lifespan — Webinar Replay
Jennifer Epstein provides an overview of methods that support the practice of readiness skills, and helps caregivers understand the common hurdles affecting skill attainment specific to Fragile X syndrome.
Using Mindfulness and Acceptance Techniques to Reduce Stress — Webinar Replay
Dr. Anne Wheeler provides an overview of stress vulnerability in women with (and without) a premutation, and how mindfulness-based techniques can be helpful for increasing mindfulness, reducing stress, and improving overall well-being.
FXS Female Issues Webinars
See all FXS female issues resources →
Includes relationships and executive functioning issues.
Females with FXS: Strategies for Developing Executive Functioning and Social Skills — Webinar
Barb Haas-Givler presents a one-hour Q&A session on resources and strategies for the classroom, home, and community.
Effective Strategies to Promote and Support Social Skills — Presentation
Jayne Dixon-Weber shares top takeaways from Barbara Haas-Givler's conference presentation on effective strategies to promote and support social skills for individuals with Fragile X syndrome.
Strategies to Improve Executive Functioning for School-Aged Girls with Fragile X Syndrome — Presentation
Jayne Dixon-Weber shares top takeaways from Barbara Haas-Givler's conference presentation strategies for improving executive functioning for girls with Fragile X syndrome
Females and Fragile X Syndrome — Webinar Replay
Dr. Braden helps us understand the difference between males and females with Fragile X syndrome as well as strategies for common challenges for females that include executive functioning and relationships.
FXS School & Education Webinars
Education Strategies for Success — Webinar
Educational strategies are not just helpful for school-aged children! The one-hour Q&A panel discussion, moderated by Hilary Rosselot, includes panelists with expertise and suggestions to support individuals living with Fragile X throughout the lifespan!
FXS Medications Webinars
2022 Medications Update — Webinar
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
Medications for Fragile X: Anxiety, Irritable Behaviors & Aggression — Webinar
Drs. Berry-Kravis and Erickson discuss currently available supportive medications for treating anxiety and irritable, agitated, and aggressive behaviors in Fragile X syndrome.
Panel Discussion on Medications — Webinar
Our expert panel of Drs. Erickson, Berry-Kravis, and Hagerman discuss medications including what age anxiety medications should be considered, medications for aggressive behavior, and side effects.
FXS Physical & Medical Concerns Webinars
See all physical & medical conditions resources →
Includes mosaicism.
How to Prepare for a Telehealth Visit
Drs Rebecca Shaffer and Ernie Pedapati tell you how to prepare for your telehealth visit, including behavioral checkups. They are with Fragile X Clinic at Cincinnati Children's Hospital. Their advice is applicable to all visits.
Mosaicism in Fragile X Syndrome — Webinar Replay
From Brenda Finucane, a look at mosaicism in Fragile X syndrome presented to make genetics easier to understand.
FXS Puberty & Sexuality Webinars
Reproductive Health — Webinar
Drs. Heather Hipp and Victoria Wilkins joined us for an informative webinar on the topic of Reproductive health. This is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.
Fragile X Premutation Webinars
Fragile X Premutation Panel Discussion
Panelists Drs. David Hessl, Emily Allen, Deborah Hall and Randi Hagerman share their expertise on the Fragile X premutation at the 18th International Fragile X Conference.
Premutation Concerns — Presentation
Dr. Randi Hagerman discusses all of the Fragile X-associated conditions and disorders and provides strategies for some of their characteristics.
Premutation Carrier Concerns Panel Discussion
Panelists Randi Hagerman, Heather Hipp, Emily Allen, and Marsha Mailick helps answer what it means for your health, your family, and your future at the 17th International Fragile X Conference.
Premutation Disorders & Conditions — Webinar
Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q&A session following her presentation.
FXPOI Webinars
Reproductive and Gynecologic Care for Women with the Fragile X Premutation — Webinar
Care for women with FXPOI who struggle with infertility and the health effects of early onset ovarian insufficiency, including hot flushes, night sweats, and risks of osteoporosis.
FXTAS Webinars
Diagnosis and Treatment of Fragile X-Associated Tremor Ataxia Syndrome — Webinar
This webinar provides a clinical overview of the diagnosis and treatment of FXTAS, including a summary of its clinical features, treatment options, and information about in-vitro fertilization.
Advancing Our Understanding and Future Treatment of FXTAS Panel Discussion
Experts Deborah Hall, Maureen Leehey, Peter Todd, and Nancy Hertzig discuss the latest in FXTAS research and treatment.
Fragile X-Associated Tremor/Ataxia Syndrome 101 — Webinar
Neurologists Drs. Deborah Hall and Maureen Leehey provide an overview of FXTAS, a summary of the clinical features in the disease, and treatment options, including surgery, for FXTAS patients.
Premutation Reproductive Issues & Options Webinars
Reproductive Health — Webinar
Drs. Heather Hipp and Victoria Wilkins joined us for an informative webinar on the topic of Reproductive health. This is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.