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This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
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Explore clinical trial challenges, outcome measures, treatment development, and how researchers, clinicians, families, and advocates are working together to advance better treatments for Fragile X.
Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
All Webinars and Videos
Explore clinical trial challenges, outcome measures, treatment development, and how researchers, clinicians, families, and advocates are working together to advance better treatments for Fragile X.
Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
An update on Shionogi’s EXPERIENCE clinical trial program in Fragile X syndrome, hosted by FRAXA and the National Fragile X Foundation. This webinar discusses the recently shared trial updates, what is known so far, and what comes next.
Experts discuss how anxiety manifests differently across developmental levels, its overlap with depression, and evidence-based treatments, including behavioral and medication approaches. Presenters share practical tools for managing anxiety in school, work, and social settings.
Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
The NFXF and LivJoy Foundation have partnered to present the Females with Fragile X syndrome webinar series. Join NFXF Executive Director Hilary Rosselot, LivJoy Foundation President Rachel Clouse, and LivJoy Foundation Fellow Dr. Lauren Jenner.
A discussion with Dr. Jeanine Coleman about the skills needed for college and how they’re linked directly to skills that begin in early childhood.