46

Groups

29

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Fri 15

TX: FXAT Houston Christmas Party

December 15 @ 6:30 PM - 8:30 PM UTC-6
Houston TX
Jan 20

PA: Family Event

January 20, 2018 @ 4:00 PM - 6:00 PM UTC-5
Feb 25

NY: Gallop Party

February 25, 2018 @ 11:00 AM - 1:00 PM EST
Forest Hills NY
Hi Joshua!
Joshua
Hi Christian!
Christian
Hi Zach!
Zach
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!
Samantha

NFXF Biobank™

NFXF Biobank

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

Contact Us

Contact Us