Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.


Host a fundraiser

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What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Sat 24

MO: Spring Workshop – Planning for and Transitioning to Adulthood

February 24 @ 9:00 AM - 2:00 PM UTC-5
St. Louis MO
Sat 24

FL: Moms Day

February 24 @ 10:30 AM - 1:30 PM UTC-5
Miami FL
Sun 25

NY: Gallop Party

February 25 @ 11:00 AM - 1:00 PM EST
Forest Hills NY
Mar 03

CO: Parent Support Group

March 3 @ 10:00 AM - 12:00 PM UTC-7
Aurora CO
Mar 05

NFXF Advocacy Day

March 5 - March 6
Alexandria VA
Mar 10

FL: Educational Workshop

March 10 @ 8:30 AM - 3:30 PM UTC-5
Coral Gables FL
Mar 14

CT: Moms and Siblings Night Out

March 14 @ 6:30 PM - 9:00 PM UTC-5
South Windsor CT
Mar 24

GA: Greater Atlanta Fragile X Brew Fest

March 24 @ 7:00 PM - 10:00 PM UTC-5
Kennesaw GA
Mar 25

MA: Sensory-friendly roller skating event

March 25 @ 9:30 AM - 11:30 AM UTC-5
Hadley MA
Apr 07
Hi Joshua!
Hi Christian!
Hi Zach!
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

Contact Us

Contact Us