The National Fragile X Foundation

The National Fragile X Foundation


The Fragile X community with knowledge, resources, tools and hope ...

What Is Fragile X Syndrome?

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Spotlight: Zachary Fraser-Thiede

Zachary Fraser-Thiede

After Zachary joined a local fundraiser where he raised $1,800 to help save the cheetahs (his favorite animal) of North America, his mom, Jennifer, had a brilliant idea. She helped find the perfect job for a young man who loves animals as much as Zach does: The zoo.

Read Zachary's Story

Our Vision, Mission and Priorities

Our Vision — A world where every family is empowered to successfully navigate the Fragile X journey.

Our Mission — To serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.

Our Priorities — We achieve our vision and mission with the support and focus on our Community through four strategic priority areas: Advocacy, Education, Research, and Treatment.

Make An Impact

Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved.

Upcoming Events

Upcoming Events