MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Host Fundraiser

Connect Locally

Be a Volunteer

Volunteers

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

NEWS

Changes are Underway at the Foundation
September 18, 2017 by NFXF
Ten Rules of Time-Out
September 14, 2017 by NFXF
Behavior Daily Living Strategies Karen Riley
Toilet Training the Child with Fragile X Syndrome
September 14, 2017 by NFXF
Behavior Toilet Training Young Children
Please Don’t Poo Poo This Article
September 14, 2017 by NFXF
Behavior The Mosey with Jayne Toilet Training
Toilet Training Child With Fragile X Syndrome: An Overview and Guide
September 14, 2017 by NFXF
Behavior Daily Living Strategies Occupational Therapy Toilet Training Young Children

NFXF Biobank™

NFXF Biobank

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

46

Groups

29

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Join The Community

Discover Research

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Changes are Underway at the Foundation

Ten Rules of Time-Out

Toilet Training the Child with Fragile X Syndrome

Please Don’t Poo Poo This Article

Toilet Training Child With Fragile X Syndrome: An Overview and Guide

Joshua

Christian

Zach

Eric, Cole and Cale

Samantha

NFXF Biobank™

Volunteer Spotlight

Meet Woody Belt

Recent Projects

New York Stock Exchange bell ringing

Anything for Fragile X

X-Strides: Walks for Fragile X

NFXF Advocacy Day

Contact Us