The National Fragile X Foundation

Together, We’re Stronger

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CHAPTERS

32
CLINICS

15,000
FAMILIES

strong

What Is Fragile X Syndrome?

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Explore Fragile X

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Join The Community

Find events and local community groups near you.

Discover Research

Find a clinic and get involved in current research projects.

Spotlight: Riley Lynch

Spotlight:
Riley Lynch

Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut.

Read Riley's Story

Our Mission

Awareness - To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

The National Fragile X Foundation

What Is Fragile X Syndrome?

Spotlight: Riley Lynch

Spotlight:Riley Lynch

Our Mission

Make An Impact

News and Features

Joshua’s Mom on Participating in Fragile X Clinical Trials

Faces of Fragile X: Aaron

What is Early Check?

Back to School Resources for Parents (and Teachers) of Fragile X Students

Metformin in Individuals with Fragile X Syndrome

Upcoming Events

Dayton Area Fragile X Family Picnic

X Strides 2019 Heartland - Iowa

X Strides Kansas - 9th Annual Walk/Run

Duckfest : Beer and Music Festival

Caregivers Night Out

Ayers Fragile X Fall Fest

Cork and Cafe

Changing Behaviors and Optimizing Learning Through Integrated Intervention

NFXF Kansas Chapter Learning Series

Empowering Families Impacted By Fragile X Syndrome

X Strides 2019 Southeast Pennsylvania

Spotlight:
Riley Lynch