MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Host Fundraiser

Connect Locally

Be a Volunteer

Volunteers

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

NEWS

Enter the 2017 Rare Artist Contest by EveryLife Foundation
October 23, 2017 by David Salomon
Target and Tommy Hilfiger introduce adaptive clothing for people with special needs
October 19, 2017 by David Salomon
Adaptive Clothing Sensory Integration
Halloween Season!
October 16, 2017 by David Salomon
Behavior Daily Living Strategies Ideas from Parents Special Occasions
Fragile X Premutation Issues Front and Center on the World Stage
October 5, 2017 by David Salomon
FXCRC FXTAS Premutation Carriers Research
Study: Brain Development in Relation to Girls with Fragile X Syndrome
October 4, 2017 by David Salomon
Research Recruitment Stanford

NFXF Biobank™

NFXF Biobank

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

46

Groups

29

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Join The Community

Discover Research

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Enter the 2017 Rare Artist Contest by EveryLife Foundation

Target and Tommy Hilfiger introduce adaptive clothing for people with special needs

Halloween Season!

Fragile X Premutation Issues Front and Center on the World Stage

Study: Brain Development in Relation to Girls with Fragile X Syndrome

Joshua

Christian

Zach

Eric, Cole and Cale

Samantha

NFXF Biobank™

Volunteer Spotlight

Meet Woody Belt

Recent Projects

New York Stock Exchange bell ringing

Anything for Fragile X

X-Strides: Walks for Fragile X

NFXF Advocacy Day

Contact Us