MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Host Fundraiser

Connect Locally

Be a Volunteer

Volunteers

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

NEWS

Research: Did you grow up in Iowa, or know someone who did?
June 20, 2018 by David Salomon
Northwestern University Research Research Recruitment
The NFXF Conference, Research Opportunities, and a Fragile X Q&A
June 13, 2018 by David Salomon
2018 NFXF International Conference Medication NFXF Webinar Recap Research Webinars
Building Social Supports: A Guide for Parents
June 13, 2018 by NFXF
Behavior Jennifer Epstein Treatment and Intervention
Survey: Parent decision-making to inform Fragile X syndrome clinical drug trials
June 4, 2018 by David Salomon
Research Research Recruitment
2018 NFXF Junior Investigators Awards
May 23, 2018 by David Salomon
2018 NFXF International Conference Junior Investigators Awards

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

24

Chapters

30

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Join The Community

Discover Research

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Research: Did you grow up in Iowa, or know someone who did?

The NFXF Conference, Research Opportunities, and a Fragile X Q&A

Building Social Supports: A Guide for Parents

Survey: Parent decision-making to inform Fragile X syndrome clinical drug trials

2018 NFXF Junior Investigators Awards

Joshua

Christian

Zach

Eric, Cole and Cale

Samantha

NFXF Biobank™

Volunteer Spotlight

Meet Woody Belt

Recent Projects

New York Stock Exchange bell ringing

Anything for Fragile X

X-Strides: Walks for Fragile X

NFXF Advocacy Day

Contact Us