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What Is Fragile X Syndrome?

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Explore Fragile X

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Join The Community

Find events and local community groups near you.

Discover Research

Find a clinic and get involved in current research projects.

Spotlight: Riley Lynch

Spotlight:
Riley Lynch

Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut.

Read Riley's Story

Our Mission

Awareness - To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

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What Is Fragile X Syndrome?

Spotlight: Riley Lynch

Spotlight:Riley Lynch

Our Mission

Make An Impact

News and Features

Steve and Shirley Kaufman are determined to Stand Up to Fragile X

Longitudinal Study of Brain and Cognition in Fragile X Premutation Carriers (TRAX)

How You Can Stand Up to Fragile X

Clinical Trial CONNECT-FX: ZYN002 Gel

Managing Anxiety…What Works And Why?

Upcoming Events

Fragile X Family Bowling

2nd Annual "All in for Fragile X" Casino Night - Save the Date

Spotlight:
Riley Lynch