Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.


Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Jul 08

IL: Family Pool Party

July 8 @ 2:00 PM - 4:00 PM UTC-5
Le Roy Illinois
Jul 18

NY: Brooklyn Bridge Picnic and “X Strides” Walk

July 18 @ 5:30 PM - 7:30 PM UTC-5.5
Brooklyn NY
Jul 22

North Carolina Fragile X Awareness Bowl-a-Thon

July 22 @ 2:00 PM - 5:00 PM UTC-5
Clayton NC
Jul 28

X Strides: Minnesota

July 28 @ 9:30 AM - 1:00 PM UTC-6
Saint Paul MN
Jul 28

X Strides: Northern California

July 28 @ 10:00 AM - 2:00 PM UTC-8
Oakland CA
Jul 29

X Strides: New Hampshire

July 29 @ 9:00 AM - 12:00 PM UTC-5
Derry NH
Hi Joshua!
Hi Christian!
Hi Zach!
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

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