No family or individual should face their Fragile X journey alone. BE XTRAORDINARY
We support every Fragile X journey.
Yes, the conference is happening!
Register now for dates in May, June & July.
May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup
Yes, the conference is happening!
Register now for dates in May, June & July.
May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup
What Is Fragile X Syndrome?
Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.
We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
Spotlight: Riley Lynch
Spotlight:
Riley Lynch
Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut.
Our Mission
Make An Impact
Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved.
