TOGETHER WE CAN
CHANGE LIVES
TOGETHER WE CAN RAISE
AWARENESS
TOGETHER WE CAN FIND
BETTER TREATMENTS AND A CURE
TOGETHER, WE'RE STRONGER

46

Groups

29

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Advocacy

Host a fundraiser

Host Fundraiser

Connect Locally

Connect Locally

Be a Volunteer

Volunteers

What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

NEWS

Families

Hi Joshua!
Joshua

Joshua

Hi Christian!
Christian

Christian

Hi Zach!
Zach

Zach

Hi Eric, Cole, Cale!
Eric, Cole and Cale

Eric, Cole and Cale

Hi Samantha!
Samantha

Samantha

NFXF Biobank™

NFXF Biobank

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

Contact Us

Contact Us