JOIN US JULY 14-17
18TH NFXF INTERNATIONAL FRAGILE X CONFERENCE
What Is Fragile X Syndrome?
Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.
We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
Spotlight: Zachary Fraser-Thiede
Spotlight:
Zachary Fraser-Thiede
After Zachary joined a local fundraiser where he raised $1,800 to help save the cheetahs (his favorite animal) of North America, his mom, Jennifer, had a brilliant idea. She helped find the perfect job for a young man who loves animals as much as Zach does: The zoo.
Our Vision, Mission and Priorities
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Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved.
