Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.


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What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

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Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Sat 24

GA: Greater Atlanta Fragile X Brew Fest

March 24 @ 7:00 PM - 10:00 PM UTC-5
Kennesaw GA
Sun 25

MA: Sensory-friendly roller skating event

March 25 @ 9:30 AM - 11:30 AM UTC-5
Hadley MA
Apr 07

FL: Cape Coral Touch-a-Truck

April 7 @ 9:00 AM UTC-5
Cape Coral FL
Apr 07
Apr 07

AL: “All in for FX!” Casino Night

April 7 @ 6:00 PM - 9:30 PM UTC-6
Birmingham AL
Apr 09

IA-SD: NFXF Heartland Survey/Chapter Conference Call

April 9 @ 8:00 PM - 9:00 PM UTC-5
Apr 13

CA: San Diego Family Meeting with Robert M. Miller

April 13 @ 4:00 PM - 6:00 PM UTC-8
San Diego CA
Apr 21

MN: Adult dinner

April 21 @ 6:00 PM - 10:00 PM UTC-6
Northfield MN
Apr 30

IN: NFXF Tri-State Chapter Annual Golf Outing

April 30 @ 11:30 AM - 7:00 PM UTC-6
Lawrenceburg IN
Jun 02

IA and SD: Bike To X Out Fragile X

June 2 @ 7:30 AM - 5:00 PM UTC-5
Ankeny IA
Hi Joshua!
Hi Christian!
Hi Zach!
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

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