19th NFXF International Fragile X Conference

The NFXF International Fragile X Conference is the premier educational event for the Fragile X community. This biennial event brings individuals with Fragile X and their families, caregivers, friends, and professionals together to learn from one another and celebrate Fragile X. This unique experience is not only educational but also empowering.

Join Us July 25–28, 2024, in Orlando!

The 19th NFXF International Fragile X Conference is July 25–28, 2024, at the Renaissance Sea World in Orlando. Conference sessions focus on strategies and techniques for living with all the Fragile X-associated conditions, information about emerging research and treatments, and opportunities to build community through storytelling. Join us!

We’ve Dropped Our Ticket Prices!

40th Anniversary conference logoTo celebrate our 40th anniversary we dropped ticket prices! Continue reading to learn more about registration, childcare during the conference, and scholarship opportunities.

Registration

When: March 18 to June 15, 2024


Registration
Early Bird
3/18-4/30
Regular
5/1-6/14
Late
6/15-7/24
Individuals (18+) $249 $279 $309
Self-Advocate (13+ full mutation) $149 $179 $209
Sibling (13-17) $149 $179 $209
Professionals
(e.g., industry, government, physician, treatment, educator)
$299 $329 $359
Virtual Only $199 $229 $259

Childcare

Childcare will be available for $100 per day. Please watch this space for more information on how to reserve your spot.

Scholarships

Thanks to our Community Support Network chapters and community partners, supporters, and private donors, scholarships have been made available for those who meet the eligibility requirements.

Before You Apply

  • Only 1 scholarship award is allowed per household
  • Please do not register for the conference until after you have received a notification email
  • Recipients must reserve and stay at the Renaissance SeaWorld in Orlando
  • Recipients will be expected to provide feedback about the impact of attending the conference

Important Dates to Remember

  • Applications are being accepted now through March 15, 2024
  • Scholarship recipients will be notified by email by April 1, 2024
  • Recipients must confirm acceptance of the scholarship by April 8, 2024
  • Scholarship recipients must register for the conference by April 30, 2024

Scholarship Options: The application includes two scholarship options. If you meet the eligibility requirements for both scholarships you may choose to be considered for both (instructions are included with the form). Learn more about each:

The NFXF Scholarship provides a discounted early-bird registration fee of $50.

The recipient will receive a promotional code to use when registering.

The Arthur S. Mintz Memorial Scholarship Award includes:

  • Discounted early-bird registration fee of $50. You may request up to 2 discounted conference registrations per household.
  • Post-conference reimbursement for 3 nights at Renaissance SeaWorld in Orlando ($575 maximum per household).
  • Post-conference reimbursement for up to $250 per person or $500 maximum per household for eligible transportation, KiddieCorp childcare, and meal expenses.

About the Arthur S. Mintz Memorial Conference Scholarship: The scholarship was established in memory of a kind-hearted, thoughtful man who befriended a young man in his community who has Fragile X Syndrome just because he thought it might be helpful to the family and good for the young man.

Arthur “Artie” Mintz was the type of person who, when presented with a problem by his friends, would try to help them. He even went so far as to help a young woman whose family he knew seize an opportunity to attend Julliard when her family could not afford it. Artie also volunteered his time at a school for “at risk” girls during his frequent trips to Israel for his work with school administration. Artie was truly a selfless man and would never take credit nor brag about his good deeds. Many stories became public knowledge only after Artie’s passing in early 2017, though one was known by most — his relationship with the young man with Fragile X syndrome.

For four and a half years, they spent most Fridays together after school hours doing whatever the young man wanted to do and, occasionally, something Artie wanted to introduce to the young man’s life. This relationship developed into something very special for both men but the success stems from Artie’s thirst for knowledge about Fragile X Syndrome. He asked the family many questions and did his own research. He began to speak with his many friends on the off chance someone might have additional information that would be helpful to his understanding and/or the family. In large part, that is why so many in his life knew about the relationship. Everyone involved recognized Artie’s efforts made a tremendous difference and had a positive impact.

It is because of this and because those who have been touched by him, wish everyone were fortunate enough to have an Artie Mintz in their life that this scholarship was created. The Arthur S. Mintz Memorial Conference Scholarship covers the registration and hotel costs of attending the biennial NFXF International Conference. It is awarded to first-time attendees who, without this scholarship, would be unable to attend. The conference provides the opportunity to better understand Fragile X syndrome and related disorders, learn what is happening in research, connect with the greater Fragile X community, and make some new friends. Just like a friendship with Artie, the conference has a positive impact on and makes a difference in the lives of those living with Fragile X.

Questions? Contact the NFXF Conference team at conference@fragilex.org.

APPLY NOW →

Renaissance SeaWorld Orlando

The 2024 conference will be held at Renaissance SeaWorld in Orlando. The hotel is about 18 minutes from Orlando International Airport (MCO). We recommend using a ride-share app or getting a rental car. We have a discounted rate for parking at the hotel.

BOOK YOUR ROOMS →.

Speakers & Agenda

Please Note: The submission deadline for speakers has passed. Please email conference@fragilex.org with any questions.

Meet-ups, panel sessions, and networking opportunities will be integrated throughout the conference. We will update the agenda between now and the conference as schedules are confirmed. Please note times are estimates and subject to change.

Main topics include:


Time
Thursday
7/25/24
Friday
7/26/24
Saturday
7/27/24
Sunday
7/28/24
9 am–
12 pm
Keynote

Conference sessions

Keynote

Conference sessions

Panels
12 pm–
5 pm
Family-to-family sessions

First-time attendee session

Conference sessions

Industry updates

Conference sessions
5 pm–
8 pm
Conference kick-off Poster session Celebration!

Conference topics will include:

  • Young Children
  • School-Age Children
  • Transitioning
  • Adults (e.g., housing, employment)
  • Females
  • Development & Behavior
  • Education
  • Medications & Treatments
  • Family-Friendly Basic, Clinical & Translational Research
  • Estate Planning
  • Fragile X–Associated Primary Ovarian Insufficiency (FXPOI)
  • Fragile X–Associated Tremor/Ataxia Syndrome (FXTAS)
  • Other Premutation–Associated Disorders
  • Caregiving
  • General Health Considerations & Strategies
  • Reproductive Health & Options
  • Medications & Treatments
  • Family-Friendly Basic, Clinical & Translational Research
  • Combined and separate sibling and self-advocate content will be provided.
    • Being a Sibling
    • Self-Advocate Success Stories
    • Employment Resources
    • Social Interactions (e.g., friends, romantic relationships)
    • Coping with Anxiety
    • Healthy Lifestyle Choices
    • Reproductive Health & Options

Conference FAQs

Conference locations are chosen years in advance through a competitive proposal process. Our partner helps us select sites that are best suited for the Fragile X community. We will continue to move the Conference around the country to manage overall costs.

The NFXF is a bipartisan organization in all things we do.

19th NFXF International Fragile X Conference Orlando Florida

   IMPORTANT DATES

Conference
July 25–28, 2024

Hotel Reservations
Open Now

Scholarship Deadline
March 15, 2024

Registration Opens
March 18, 2024

REGISTRATION

Registration will open on March 18, 2024.

SCHOLARSHIPS

Applications are being accepted now through March 15, 2024. See additional information on this page.

APPLY NOW

  HOTEL

Renaissance SeaWorld in Orlando reservations are now open.

BOOK YOUR ROOM

   SPEAKERS & AGENDA

Please see the general agenda details on this page. We’ll add more details as they become available.

   MEET OUR 2024 SPONSORS TO DATE

Harmony Biosciences logo
Fragile X Clinical and Research Consortium logo
Fragile X Association of Southern California
National Down Syndrome Society (NDSS) logo
FORWARD-MARCH Multiple Assessments for Research Characterization logo
Fragile X Alliance of Texas - San Antonio logo
International Fragile X Premutation Registry logo
Me and the Mouse Travel logo
Fragile X Association of New York logo

Sign up for conference updates