About the National Fragile X Foundation

The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.

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Mission & Vision

Awareness, Research, Community

Our mission is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Linda Sorensen

Our Team

Meet the People That Make NFXF Possible

Here you can meet our staff, regional leaders, board of directors, and the NFXF Scientific and Clinical Advisory Committee.

Two women in front of the U.S. capital building

Our Programs

Research, Clinic, and Support Programs

A list of programs to meet our mission and vision for the community.

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Financials & Impact Report

Audited Financial Statements

The National Fragile X Foundation was founded in 1984 as a public, non-profit 501(c)(3) charitable organization. To give our donors confidence that their donations are being used wisely to support Fragile X families, we provide audited financial statements, government certifications, independent certifications, and an annual impact report based on our audited financial statements. We are funded through individual contributions.