The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.
The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.
We wanted to explain to you why the National Fragile X Foundation is so important to us. Not only does it provide us with support each and every day as we navigate the journey of Fragile X syndrome, but it also gives us a lot of hope for what is to come in the future and all the opportunities that are still ahead for Gavin, and for us as a family. We will match up to $4,000 in new contributions as part of our commitment to the Foundation and to Gavin's future.
For this year's Giving Tuesday we're following on a tradition we started last year. Giving something to you, the Fragile X community. Choose from one of our four holiday designs for your Christmas, holiday, Hannukah, or new year card.
Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.
Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q & A session following her presentation. You can watch the video and access the additional resources.
An update on our advocacy efforts, including Advocacy Day 2022 and key legislation we are currently supporting.
Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.
A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.
Meet an xtraordinary employee, Zach, who turned his love of animals into his perfect job at the Monterey Zoo.
A $4 million cooperative agreement to “Characterize the Natural History of Fragile X Syndrome to Inform the Development of Intervention and Outcome Measures” was awarded to Dr. Elizabeth Berry-Kravis of Rush University Medical Center by the Centers for Disease Control and Prevention (CDC).
Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.
Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.