Dan Whiting, Author at National Fragile X Foundation

Faces of Fragile X: Cody

What would you like others to know about him? I want people to know that Cody is my reason. My reason why I do the things I do for the Fragile X Community. My [...]

By Dan Whiting| 2019-07-20T15:17:42+00:00 Jul 20, 2019|Faces of Fragile X|Comments Off

South Carolina Fragile Awareness X Day 2019

Governor Hency McMaster proclaims July 22, 2019 as Fragile X Awareness Day in South Carolina. Read his entire proclamation.

By Dan Whiting| 2019-07-19T11:12:02+00:00 Jul 19, 2019|Awareness Day|Comments Off

Faces of Fragile X: Ian

Ian has Fragile X syndrome. Meet Ian and see what his mom says about him, what she wants her community to know about Fragile X, and her advice for new parents.

By Dan Whiting| 2019-07-18T16:20:53+00:00 Jul 18, 2019|Faces of Fragile X|Comments Off

Pack Your Lunch for Fragile X

July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!

By Dan Whiting| 2019-07-18T18:03:25+00:00 Jul 17, 2019|Awareness Day|Comments Off

Faces of Fragile X: John Menke

John Menke has FXTAS. Read what his daughter, Kelly, has to say about him, FXTAS, research, advice to new parents, and more.

By Dan Whiting| 2019-07-20T15:23:20+00:00 Jul 16, 2019|Faces of Fragile X|Comments Off

New Hampshire Fragile X Awareness Day

Governor Christopher Sununu proclaimed July 22, 2019 as Fragile X Awareness Day in New Hampshire.

By Dan Whiting| 2019-07-18T14:21:10+00:00 Jul 15, 2019|Awareness Day|Comments Off

Faces of Fragile X: Jack

Jack is a very happy 7-year-old boy. He is healthy, loves to swim, loves animals, and, while is he delayed, he continues to gain skill and learn new things every day.

By Dan Whiting| 2019-07-14T08:19:31+00:00 Jul 14, 2019|Faces of Fragile X|Comments Off

Behold: The Fragile X Syndrome Burger

Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.

By Dan Whiting| 2019-07-18T14:22:32+00:00 Jul 12, 2019|Awareness Day|Comments Off

Face of Fragile X: Logan

What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.

By Dan Whiting| 2019-07-12T12:02:06+00:00 Jul 12, 2019|Faces of Fragile X|Comments Off

Faces of Fragile X: David

Meet our friend David. David likes the show Law and Order because they fight the bad guys. He had a lot of fun at last year’s Conference.

By Dan Whiting| 2019-07-11T13:34:23+00:00 Jul 11, 2019|Faces of Fragile X|Comments Off

Faces of Fragile X: Patrick

What would you like others to know about him? Pat is funny and likes to laugh. He does not speak but is funny in his own way. As an example, if you ask, "How [...]

By Dan Whiting| 2019-07-09T10:02:22+00:00 Jul 9, 2019|Faces of Fragile X|Comments Off

Faces of Fragile X: Avery

Avery is beautiful. She has the best curly hair around. She loves animals, routines, her neighbor friends, her cousins, and putting on makeup with her auntie. She is so smiley and always excited to see her cousin Elliott.

By Dan Whiting| 2019-07-05T13:26:40+00:00 Jul 5, 2019|Faces of Fragile X|Comments Off

Faces of Fragile X: Nicholas

What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

By Dan Whiting| 2019-07-03T13:19:47+00:00 Jul 3, 2019|Blog, Faces of Fragile X|Comments Off

Happy Father’s Day to All Fragile X Dads

For this Father's Day, some very special kids are telling their dad's they love them and why in their own, unique ways. But the message is for all Fragile X dads who go the x-tra mile on this journey. To all of you - thank you!

By Dan Whiting| 2019-06-17T08:56:44+00:00 Jun 17, 2019|Awareness Day|Comments Off