dan@fragilex.org

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So far Dan Whiting has created 76 blog entries.

Pack Your Lunch for Fragile X

July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!

By | 2019-07-18T18:03:25+00:00 Jul 17, 2019|Awareness Day|Comments Off on Pack Your Lunch for Fragile X

Behold: The Fragile X Syndrome Burger

Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.

By | 2019-07-18T14:22:32+00:00 Jul 12, 2019|Awareness Day|Comments Off on Behold: The Fragile X Syndrome Burger

Face of Fragile X: Logan

What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.

By | 2019-07-12T12:02:06+00:00 Jul 12, 2019|Faces of Fragile X|Comments Off on Face of Fragile X: Logan

Faces of Fragile X: Avery

Avery is beautiful. She has the best curly hair around. She loves animals, routines, her neighbor friends, her cousins, and putting on makeup with her auntie. She is so smiley and always excited to see her cousin Elliott.

By | 2019-07-05T13:26:40+00:00 Jul 5, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Avery

Faces of Fragile X: Nicholas

What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

By | 2019-07-03T13:19:47+00:00 Jul 3, 2019|Blog, Faces of Fragile X|Comments Off on Faces of Fragile X: Nicholas

Happy Father’s Day to All Fragile X Dads

For this Father's Day, some very special kids are telling their dad's they love them and why in their own, unique ways. But the message is for all Fragile X dads who go the x-tra mile on this journey. To all of you - thank you!

By | 2019-06-17T08:56:44+00:00 Jun 17, 2019|Awareness Day|Comments Off on Happy Father’s Day to All Fragile X Dads
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