• Shop
  • Contact

dan@fragilex.org

Home/Dan Whiting

About Dan Whiting

Dan Whiting, director of community impact, has been a member of the NFXF team since 2017. He has over 20 years of experience in public policy and communications, including time on staff of a U.S. Senator for 11 years, in the Bush administration as chief of staff at an agency, and as a senior strategist for communication initiatives across the U.S. Department of Defense. Dan loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer.

Zynerba Announces Results from CBD Gel Clinical Trial

By |2020-08-03T10:15:33-04:00Jun 30, 2020|Research|

"These top-line data show promise for Zygel in some individuals with Fragile X syndrome. We look forward to seeing the next steps taken by Zynerba, and continue to be thankful for their thoughtful partnership and dedication to bettering the lives of those living Fragile X.” —Linda Sorensen, NFXF Executive Director

NFXF 2020 Virtual Graduation Ceremony

By |2020-08-03T10:43:53-04:00Jun 6, 2020|Blog|

To honor all Fragile X self-advocates and siblings who are being promoted/graduating in 2020, we held a virtual graduation ceremony. Gregg Harper, former Member of Congress from Mississippi and a Fragile X dad, gave a commencement address. 

Load More Posts