About Dan Whiting

Dan served as the NFXF Director of Community Impact from 2017 to 2022. He has over 23 years of experience in public policy and communications, including 11 years as a staff member for a U.S. Senator, in the Bush Administration as Chief of Staff at an agency, and as a senior strategist for communication initiatives across the DOD. During his time at the NFXF, he was passionate about helping individuals with intellectual and developmental disabilities live better lives.

The ABLE Employment Flexibility Act

By |2023-03-11T21:03:15-05:00Jan 13, 2022|Advocacy|

The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.

Why Laurie, Will, and Caroline Bridges Support the NFXF

By |2021-12-14T15:01:47-05:00Dec 13, 2021|Blog|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.

An Xtraordinary Employee: Clay

By |2022-08-02T19:21:56-04:00Oct 19, 2021|Blog|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

Tell Us About An Xtraordinary Employee

By |2022-10-20T14:01:29-04:00Jun 16, 2021|Awareness Month|

his year, as part of our awareness efforts, we are sharing about individuals with Fragile X syndrome who are working – paid, volunteer, full-time, part-time, and more. We want to raise awareness of the value of employment of individuals with intellectual and developmental disabilities for the employee, employer, and their coworkers.

Fragile X Awareness Signs

By |2021-05-28T15:05:16-04:00May 28, 2021|Awareness Month, Blog|

We designed several Fragile X awareness yard signs so you can choose one that serves you best. Each are printed on-demand and shipped directly to you with everything you need to display them in your yard for all of July or even longer if you choose.

NFXF Webinar Series: Fragile X Syndrome

By |2023-12-21T11:11:56-05:00May 18, 2021|FXS|

Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS). She covers everything from brief descriptions of the Fragile X-associated disorders, such as FXTAS and FXPOI, to details about FXS.

Advocacy Day Social Story

By |2021-02-09T16:22:39-05:00Feb 9, 2021|Advocacy|

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.

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