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About Dan Whiting

Dan Whiting, director of community impact, has been a member of the NFXF team since 2017. He has over 20 years of experience in public policy and communications, including time on staff of a U.S. Senator for 11 years, in the Bush administration as chief of staff at an agency, and as a senior strategist for communication initiatives across the U.S. Department of Defense. Dan loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer.

The ABLE Employment Flexibility Act

By |2022-01-13T15:30:26-05:00Jan 13, 2022|Advocacy|

The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.

Why Laurie, Will, and Caroline Bridges Support the NFXF

By |2021-12-14T15:01:47-05:00Dec 13, 2021|Blog|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.

Emily and Greg Mack Offer a Matching Gift

By |2021-12-22T13:35:09-05:00Dec 6, 2021|Blog|

We wanted to explain to you why the National Fragile X Foundation is so important to us. Not only does it provide us with support each and every day as we navigate the journey of Fragile X syndrome, but it also gives us a lot of hope for what is to come in the future and all the opportunities that are still ahead for Gavin, and for us as a family. We will match up to $4,000 in new contributions as part of our commitment to the Foundation and to Gavin's future.

Free, Customizable Holiday Card Templates

By |2021-11-30T21:42:52-05:00Nov 29, 2021|Advocacy|

For this year's Giving Tuesday we're following on a tradition we started last year. Giving something to you, the Fragile X community. Choose from one of our four holiday designs for your Christmas, holiday, Hannukah, or new year card.

2021 NFXF Webinar Series: Fragile X Premutation

By |2021-11-12T11:19:35-05:00Nov 9, 2021|Webinar|

Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q & A session following her presentation. You can watch the video and access the additional resources.

2021 NFXF Webinar Series: Medication Use in Fragile X Syndrome

By |2021-12-22T13:32:16-05:00Oct 26, 2021|Webinar|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

An Xtraordinary Employee: Clay

By |2021-10-28T09:36:36-04:00Oct 19, 2021|Blog|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

LIVE: X Strides Closing Ceremony

By |2021-07-31T16:39:31-04:00Jul 29, 2021|Blog|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

NFXF Webinar Series: Collaborate with Us

By |2021-07-29T13:59:45-04:00Jul 29, 2021|Webinar|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

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