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About Dan Whiting

Dan Whiting, director of community impact, has been a member of the NFXF team since 2017. He has over 20 years of experience in public policy and communications, including time on staff of a U.S. Senator for 11 years, in the Bush administration as chief of staff at an agency, and as a senior strategist for communication initiatives across the U.S. Department of Defense. Dan loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer.

An Xtraordinary Employee: Clay

By |2021-10-19T14:54:08-04:00Oct 19, 2021|Blog|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

LIVE: X Strides Closing Ceremony

By |2021-07-31T16:39:31-04:00Jul 29, 2021|Blog|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

NFXF Webinar Series: Collaborate with Us

By |2021-07-29T13:59:45-04:00Jul 29, 2021|Webinar|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress

By |2021-06-28T11:04:59-04:00Jun 24, 2021|Blog, Carriers, Webinar|

Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.

Tell Us About An Xtraordinary Employee

By |2021-07-01T15:37:23-04:00Jun 16, 2021|Awareness Month|

his year, as part of our awareness efforts, we are sharing about individuals with Fragile X syndrome who are working – paid, volunteer, full-time, part-time, and more. We want to raise awareness of the value of employment of individuals with intellectual and developmental disabilities for the employee, employer, and their coworkers.

Webinar: Females and Fragile X Syndrome

By |2021-08-19T17:03:04-04:00Jun 9, 2021|Blog, FXS, Webinar|

Dr. Marcia Braden joins us to discuss Females and Fragile X syndrome (FXS). This webinar helps you better understand the features associated with the syndrome. Information processing, cognitive strengths and weakness as well as social issues are identified. Strategies to address common challenges are also discussed.

Welcome to Our Newest Board Members

By |2021-06-04T10:03:56-04:00Jun 4, 2021|Blog|

On behalf of the NFXF Board of Directors, I am excited to welcome our newest class of directors for 2021. This group of individuals have all been active members of our Fragile X community for many years and contribute in all areas of outreach.

Fragile X Awareness Signs

By |2021-05-28T15:05:16-04:00May 28, 2021|Awareness Month, Blog|

We designed several Fragile X awareness yard signs so you can choose one that serves you best. Each are printed on-demand and shipped directly to you with everything you need to display them in your yard for all of July or even longer if you choose.

NFXF Webinar Series: Fragile X Syndrome

By |2021-05-18T16:45:55-04:00May 18, 2021|FXS, Webinar|

Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS). She covers everything from brief descriptions of the Fragile X-associated disorders, such as FXTAS and FXPOI, to details about FXS.

The Genetics of Fragile X Webinar

By |2021-08-09T16:47:08-04:00Apr 29, 2021|Blog, Webinar|

Many thanks to Brenda Finucane, MS, CGC, for her webinar to help each of us understand the genetics of Fragile X. The presentation was held live online Wednesday, April 28, 2021. TYou can access an on-demand stream of it here.

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