About Dan Whiting

Dan served as the NFXF Director of Community Impact from 2017 to 2022. He has over 23 years of experience in public policy and communications, including 11 years as a staff member for a U.S. Senator, in the Bush Administration as Chief of Staff at an agency, and as a senior strategist for communication initiatives across the DOD. During his time at the NFXF, he was passionate about helping individuals with intellectual and developmental disabilities live better lives.

The ABLE Employment Flexibility Act

By |2022-04-01T15:01:19-04:00Jan 13, 2022|Advocacy|

The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.

Why Laurie, Will, and Caroline Bridges Support the NFXF

By |2021-12-14T15:01:47-05:00Dec 13, 2021|Blog|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.

2021 NFXF Webinar Series: Fragile X Premutation

By |2021-11-12T11:19:35-05:00Nov 9, 2021|Webinar|

Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q & A session following her presentation. You can watch the video and access the additional resources.

2021 NFXF Webinar Series: Medication Use in Fragile X Syndrome

By |2021-12-22T13:32:16-05:00Oct 26, 2021|Webinar|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

An Xtraordinary Employee: Clay

By |2022-06-09T10:36:11-04:00Oct 19, 2021|Blog|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

LIVE: X Strides Closing Ceremony

By |2021-07-31T16:39:31-04:00Jul 29, 2021|Blog|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

NFXF Webinar Series: Collaborate with Us

By |2021-07-29T13:59:45-04:00Jul 29, 2021|Webinar|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress

By |2021-11-04T21:29:14-04:00Jun 24, 2021|Blog, Carriers, Webinar|

Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.

Tell Us About An Xtraordinary Employee

By |2022-01-12T10:36:45-05:00Jun 16, 2021|Awareness Month|

his year, as part of our awareness efforts, we are sharing about individuals with Fragile X syndrome who are working – paid, volunteer, full-time, part-time, and more. We want to raise awareness of the value of employment of individuals with intellectual and developmental disabilities for the employee, employer, and their coworkers.

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