The Call for Presentations for the 17th NFXF International Fragile X Conference will open January 29, 2020. The Conference will be held Thursday, July 16 to Sunday, July 19, 2020, in Orlando, Florida. Here is everything you need to know to submit your presentation.
6-18 month old boys and girls with the full mutation needed for a research study Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Who can participate? Boys and girls [...]
Adults (older than 18), Males and Females, Families affected by Fragile X Needed for a Survey Why are we doing this research? The University of Kansas Medical Center is conducting a survey to learn about the medical and mental health care [...]
Children losing primary (baby) teeth, male or female, Fragile X syndrome needed for a research study Why are we doing this research? Dr. Lawrence T. Reiter, a researcher from the University of Tennessee Health [...]
Have you been diagnosed with FXTAS and want to participate in an exercise trial? See the below flyer from Dr. O’Keefe’s lab at Rush University for details. View More Opportunites VIEW ALL [...]
Individuals ages 50-80 with the FMR1 gene premutation with or without FXTAS are needed for a research study Why are we doing this research? The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral [...]
Eric has Fragile X syndrome, and his mom shares about what Eric is like. "To know Eric is to love him! I love Eric’s compassionate heart and sense of humor. He keeps us laughing." Read more.
Craig Erickson, MD, the Director of the Cincinnati Fragile X Research and Treatment Center was asked by the National Fragile X Foundation (NFXF) to discuss the use of cannabidiol (CBD) for people with Fragile X syndrome (FXS) - to answer the questions around, Can I Use CBD to treat Fragile X syndrome.
This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.
The NIH just released their Fragile X Research Plan, which identifies research priorities and aims to coordinate research efforts. We have pulled a few key excerpts.
Meet Spencer, who has Fragile X syndrome. "Spencer is the definition of joy. He loves to smile, read, swim, and play baseball.
The cold could not stop X Strides 2019 Southeast Pennsylvania! We had 260 registered, including 17 self-advocates and we raised $29,600 for Fragile X! Thanks to all who ran, walked, or donated to our [...]
Brooks and Ross are two cool guys-------they are polar opposites, though. Brooks loves his music (loud) and Ross does not like music. Brooks is tough and rugged and Ross is more fragile. Brooks loves being around people and Ross is a loner.
Gregg Harper, a former Member of Congress, gives you 3 tips to effectively advocate for Fragile X in Congress and anywhere else in government.
Meet Bryan. He has Fragile X syndrome. His sister says, he has interests and needs similar to everyone else. We like to tease each other, go to sporting events, and go swimming.