The NFXF Blog
POcKIT Study: At-Home Study for Young Children with FXS
Purdue University is conducting a research study to learn about how genetic, biological, nutritional, and environmental information relates to health and development in Fragile X syndrome.
LIVE: X Strides Closing Ceremony
Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.
NFXF Webinar Series: Collaborate with Us
Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.
South Carolina and Wisconsin Proclaim Fragile X Awareness Day
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
NFXF Webinar Series: NIH Fragile X Centers of Excellence
Learn about the Centers for Collaborative Research in Fragile X and FMR1-Related Conditions Program, which supports research to improve the diagnosis and treatment of Fragile X syndrome and its related conditions.
NFXF Webinar Series: How FORWARD is Advancing Our Understanding of Fragile X Syndrome
Representatives from the CDC join Dr. Elizabeth Berry Kravis discusses the advances made in understanding Fragile X Syndrome through FORWARD.
How is Fragile X syndrome inherited?
This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.
Study: Adolescents and Adults with IDD Needed for a Spatial Abilities Study
The Spatial Development Lab at Montclair State University is conducting a research study to learn about spatial abilities, such as why we sometimes get lost in the environment. About the Study Who can participate? ...
Tips for Flying on an Airplane
Traveling with your child with Fragile X syndrome (FXS) on an airplane can be very stressful for both of you. These tips are provided by parents based on their experiences with their own children. Find what works for you, your child, and your family.
Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress
Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.
Tell Us About An Xtraordinary Employee
his year, as part of our awareness efforts, we are sharing about individuals with Fragile X syndrome who are working – paid, volunteer, full-time, part-time, and more. We want to raise awareness of the value of employment of individuals with intellectual and developmental disabilities for the employee, employer, and their coworkers.
In Memory of Steve Warren
As a geneticist and academic, Warren’s contributions to the understanding of Fragile X and to the broader Fragile X community are immense. In addition to being a gifted scientist, he was an outstanding leader, mentor, and friend who will be greatly missed.