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Blog Home Page (News)2021-01-26T17:34:03-05:00

The NFXF Blog

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Expanding Employment Opportunities

By |Apr 16, 2021|

the National Fragile X Foundation joined forces with the new CEO Commission on Disability Employment so we can work together to eliminate barriers to employment for all individuals with a disability.

The COVID-19 Vaccines and Fragile X

By |Apr 7, 2021|

Dr. Craig Erickson held a webinar on the COVID-19 vaccines for individuals living with Fragile X premutations and full mutations. He also covered COVID-19 vaccine safety in general.

Advocacy Day Social Story

By |Feb 9, 2021|

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.

PFDD Meeting Community Forum

By |Jan 21, 2021|

The Patient-Focused Drug Development (PFDD) meeting on Fragile X syndrome is just around the corner! We need caregivers and self-advocates to participate to make this a valuable meeting. This will help you understand what to expect and what the goal is and how to share your story.

Cortical Gyrification and Its Relationships With Molecular Measures and Cognition in Children With the FMR1 Premutation

By |Dec 17, 2020|

Jun Yi Wang and the study team out of the UC Davis MIND Institute are interested in learning more about the premutation carrier condition in relations to brain development and its impact on cognition. These mental processes impact the higher-level functions of the brain including language, learning new things, and making decisions.

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