Blog Home Page (News)

Home/Blog Home Page (News)
Blog Home Page (News)2021-04-19T13:28:07-04:00

The NFXF Blog

SUBSCRIBE

2021 NFXF Webinar Series: Medication Use in Fragile X Syndrome

By |Oct 26, 2021|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

An Xtraordinary Employee: Clay

By |Oct 19, 2021|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

Understanding a Fragile X Intermediate Result

By |Oct 15, 2021|

Fragile X DNA analysis is one of the most commonly ordered medical genetic tests. It is recommended as a standard part of the genetic work-up of children with developmental delay, autism or intellectual disability. Adult neurologists and reproductive specialists increasingly recommend Fragile X testing, as awareness has grown about Fragile X-associated Tremor Ataxia Syndrome (FXTAS) and Fragile X-associated Primary Ovarian Insufficiency (FXPOI). Fragile X carrier testing during pregnancy has also become relatively commonplace in the US and elsewhere, even for women without a family history suspicious for Fragile X disorders.

8 Employee Attributes to Teach Your Young Adult

By |Oct 13, 2021|

Getting a new job is exciting, but young adults with Fragile X syndrome need to also understand what's expected of them at a workplace. Help them prepare by first understanding these eight guidelines.

Clinical Trial RECONNECT: ZYN002 Gel

By |Oct 7, 2021|

This study will evaluate the efficacy and safety of ZYN002, a clear cannabidiol (CBD) gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).

NFXF Webinar: 2021 Industry Updates

By |Sep 20, 2021|

We held an NFXF Webinar with three of our industry partners working on treatments for Fragile X syndrome. Each shared the most up-to-date information on their research project(s) in a way that is understood by those who aren’t steeped in drug research day in and day out. A short Q&A followed each presentation.