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The NFXF Blog

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Free, Customizable Holiday Card Templates

By |Nov 29, 2021|

For this year's Giving Tuesday we're following on a tradition we started last year. Giving something to you, the Fragile X community. Choose from one of our four holiday designs for your Christmas, holiday, Hannukah, or new year card.

It’s All About Employ-Ability!

By |Nov 12, 2021|

Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.

2021 NFXF Webinar Series: Fragile X Premutation

By |Nov 9, 2021|

Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q & A session following her presentation. You can watch the video and access the additional resources.

2021 NFXF Webinar Series: Medication Use in Fragile X Syndrome

By |Oct 26, 2021|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

An Xtraordinary Employee: Clay

By |Oct 19, 2021|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

Understanding a Fragile X Intermediate Result

By |Oct 15, 2021|

Adult neurologists and reproductive specialists increasingly recommend Fragile X testing, as awareness has grown about FXTAS and FXPOI. Fragile X carrier testing during pregnancy has also become relatively commonplace in the US and elsewhere, even for women without a family history suspicious for Fragile X disorders.

8 Employee Attributes to Teach Your Young Adult

By |Oct 13, 2021|

Getting a new job is exciting, but young adults with Fragile X syndrome need to also understand what's expected of them at a workplace. Help them prepare by first understanding these eight guidelines.

Clinical Trial RECONNECT: ZYN002 Gel

By |Oct 7, 2021|

This study will evaluate the efficacy and safety of ZYN002, a clear cannabidiol (CBD) gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).