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The NFXF Blog

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Conference Research Opportunity: Cincinnati Research & Treatment Center Biorepository

By |May 4, 2022|

Researchers at Cincinnati Children’s Hospital Medical Center want to partner with you or your child to learn more about Fragile X. The Cincinnati Research & Treatment Center team will be conducting research in San Diego at the Town and Country Resort from July 12-14th, 2022 for International Fragile X Meeting attendees. All ages are welcome to participate.

An Xtraordinary Employee: Corey Gershenson

By |Feb 25, 2022|

Corey Gershenson lives with Fragile X syndrome. Thanks to his determination — and employers willing to embrace employees with disabilities — he also works two jobs and volunteers at Mercy Hospital in St. Louis.

BRIDGE Study: Brain Indicators of Development Growth

By |Feb 7, 2022|

A longitudinal research study from The Wilkinson Lab at the Boston Children’s Hospital Labs of Cognitive Neuroscience to learn about how differences in brain activity affect learning, language, and behavior in Fragile X Syndrome.

The ABLE Employment Flexibility Act

By |Jan 13, 2022|

The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.

Why Laurie, Will, and Caroline Bridges Support the NFXF

By |Dec 13, 2021|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.