About Kristin Bogart

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So far Kristin Bogart has created 27 blog entries.

My Fragile X Advocacy Journey

By |2023-01-18T15:48:10-05:00Jan 11, 2023|Advocacy|

NFXF Director of Community Empowerment, Missy Zolecki, shares her recent experience as a consumer reviewer for the Department of Defense Peer Reviewed Medical Research Program

Premutation Concerns

By |2023-01-30T14:56:32-05:00Jan 5, 2023|Blog|

A New Year. Here We Come! By Jayne Dixon Weber Ups and downs, challenges and rewards – life gives us all of these. This time of year can be challenging for all of us. [...]

All Love Threads — Clothing Designed to Benefit the Special Needs Community

By |2022-11-28T12:12:48-05:00Nov 22, 2022|Blog|

Since the birth of his brother Filippo, Guido Raponi has constantly looked for ways to help support the Fragile X and special needs communities. The idea for All Love Threads was born when he looked into his closet and saw a number of unworn, fundraising t-shirts and sweatshirts and saw an opportunity to create fashionable awareness clothing.

Together We Give

By |2023-03-16T14:57:00-04:00Nov 18, 2022|Blog, Giving Tuesday|

Help us help them by supporting our mission to serve all those living with Fragile X. Advocacy, education, research, and treatment with the community are at the heart of everything we do.

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