Resources on Dentistry for Fragile X
Many families struggle with helping their loved ones with intellectual and developmental disabilities take care of their teeth. Routine care and regular exams can be a problem, especially when dental problems do occur. Finding dentists who specialize in treating people living with special needs or who are willing to learn and adapt to the individual’s needs can be difficult.
At our last Fragile X Clinical & Research Consortium meeting, many of the clinics shared they also find it challenging to find and refer quality dentists to their patients living with FXS. As a result, the NFXF team searched for helpful resources for both families and the clinics. We hope you find the following helpful!
– A general overview with helpful tips.
– An international organization of dental professionals and other individuals who are dedicated to promoting dental health and wellbeing for people with special needs.
– Dental Help for Adults with Disabilities: Care and Considerations. Includes a “FIND A DENTIST” link.
– A network of volunteer dentists and labs that serve adults with special needs across the U.S.
Tip: Try contacting a local dental university, dental school, or medical center and asking if they have a program for people with intellectual and developmental disabilities.