31 Shareable Fragile X FactsDan Whiting2021-10-27T10:49:26-04:00
31 Shareable Fragile X Facts
Why 31? Because there are 31 days in July, and every July is National Fragile X Awareness Month! So you’ll always find at least 31 facts right here (plus plenty of bonus facts), that you can read or watch + listen from Fragile X community members including moms, dads, siblings, self-advocates, researchers, genetic specialists, staff, and more. Take a listen!
Fragile X Fact
Summer, a Fragile X mom and self-advocate from Colorado.
Fragile X Fact #1
While females with FXS tend to have milder symptoms than males, they may still face challenges that require special care and attention.
Fragile X testing should be considered when there is a family history of Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), intellectual disabilities, infertility, or a diagnosis of autism.
Hilary Rosselot, NFXF associate director and research facilitation lead.
Fragile X Fact #5
Fragile X is a group of conditions: Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), Fragile X-associated primary ovarian insufficiency (FXPOI), and more emerging premutation carrier issues we are just learning about and passed through generations, often unknowingly.
People with Fragile X syndrome often have sensory sensitivities to sound, light, textures, taste, and smell that may provoke hyperarousal. Make adjustments to the environment when needed, to the extent possible.