31 Shareable Fragile X Facts

Why 31? Because there are 31 days in July, and every July is National Fragile X Awareness Month! So you’ll always find at least 31 facts right here (plus plenty of bonus facts), that you can read or watch + listen from Fragile X community members including moms, dads, siblings, self-advocates, researchers, genetic specialists, staff, and more. Take a listen!

Fragile X Fact #1

While females with FXS tend to have milder symptoms than males, they may still face challenges that require special care and attention.

FEMALES AND FRAGILE X

Fragile X Fact #2

Fragile X testing should be considered when there is a family history of Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), intellectual disabilities, infertility, or a diagnosis of autism.

FRAGILE X TESTING

Fragile X Fact #3

People with Fragile X syndrome have numerous strengths. Many love to help others, have a great memory and a great sense of humor.

FRAGILE X OVERVIEW

Fragile X Fact #4

Many females with Fragile X syndrome are excellent writers who create wonderful stories. Others nurture their creative tendencies through art forms, crafts, and home decorating.

UNIQUE CHALLENGES FOR FEMALES

CHALLENGES FOR FEMALES

Fragile X Fact #5

Fragile X is a group of conditions: Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), Fragile X-associated primary ovarian insufficiency (FXPOI), and more emerging premutation carrier issues we are just learning about and passed through generations, often unknowingly.

A NEW DIAGNOSIS

Fragile X Fact #6

To test for Fragile X, ask your doctor, genetic counselor, or healthcare provider for the FMR1 DNA test for Fragile X.

TESTING & DIAGNOSIS

Fragile X Fact #7

Fragile X syndrome is the leading known genetic cause of intellectual disability.

FRAGILE X 101

Fragile X Fact #8

Both females and males can be Fragile X premutation carriers.

FRAGILE X PREMUTATION REGISTRY

PREMUTATION REGISTRY

Fragile X Fact #9

People with Fragile X syndrome can have anxiety, behavioral and learning challenges, and various physical characteristics.

FRAGILE X SYNDROME

Fragile X Fact #10

People with Fragile X syndrome often have sensory sensitivities to sound, light, textures, taste, and smell that may provoke hyperarousal. Make adjustments to the environment when needed, to the extent possible.

10 THINGS TEACHERS NEED TO KNOW

10 THINGS FOR TEACHERS