The landscape of managing life with Fragile X is unexpected and constantly changing. Fragile X presents a unique set of challenges for parents and caregivers, and your support helps at every step of their journey.
Every day, your support:
- Provides help and resources to a newly diagnosed family searching for answers and hope.
- Creates evidence-based treatment recommendations so medical providers, educators, parents, and caregivers can provide the best possible care for all individuals living with Fragile X.
- Advocates for research opportunities and results for families.
- Delivers educational, cutting-edge information to parents and families from Fragile X experts.
- And more!
We don’t consider a diagnosis of Fragile X the end of a meaningful and successful life, just one that requires a different path than most of us are familiar with, and one that offers different opportunities than we expected.