Meet Our Donors

Our donors and fundraisers are dedicated and inspiring members of the community who are committed to ensuring that the National Fragile X Foundation is here to provide unwavering support to Fragile X families now and into the future. They know that life with Fragile X is often unexpected and sometimes incredibly challenging. They support our advocacy, awareness, and research programs, as well as our ability to provide timely educational resources and dedicated community support services that help Fragile X families each and every day.

The Bridges family

The Bridges

The Bridges support the National Fragile X Foundation because of the life-changing opportunities they discovered for their daughter Caroline.

The Stedke family

The Stedkes

For Kerry Stedke, creating awareness about Fragile X and becoming an advocate for individuals with intellectual disabilities is critically important.

Gail and Lyons Heyman and family

The Heymans

Gail and her husband Lyons have been supporters of the NFXF since 2005 when she helped host the NFXF International Conference in Atlanta.

Rajat and Stephanie Sarup

The Sarups

Jordan Sarup is 12 years old and has Fragile X syndrome. Meet a family who goes the extra mile to help their son — and every child living with Fragile X.

Anne and Jay Souder

The Souders

Anne discovered the NFXF early in her quest for support for her family after her son Alec was diagnosed with Fragile X syndrome at age four.

The Silver family

The Silvers

The NFXF was there at the beginning of their Fragile X journey, and the Silvers want to ensure it’s there for everyone’s journey.

  • a gazebo and wine barrel in front of a pond

Fragile X on the Farm

By |Jun 28, 2023|

Thank you to members of the former Maryland Fragile X Resource Group for hosting a reunion, dinner on the farm, and fundraiser in support of the NFXF!

  • A golfer on a gold course getting ready to tee off.

5th Annual FORE! Fragile X Golf Event

By |Dec 27, 2022|

The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has been an incredibly inspiring demonstration of support. Thank you Jay, Anne and Alec - and your many supporters over the years!

Image (featured) by wagnercvilela from Pixabay