Meet Our Donors
Our donors and fundraisers are dedicated and inspiring members of the community who are committed to ensuring that the National Fragile X Foundation is here to provide unwavering support to Fragile X families now and into the future. They know that life with Fragile X is often unexpected and sometimes incredibly challenging. They support our advocacy, awareness, and research programs, as well as our ability to provide timely educational resources and dedicated community support services that help Fragile X families each and every day.
FORE! Fragile X Annual Golf Event Raises over $250,000 for the NFXF!
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has raised over $250,000 for the National Fragile X Foundation. Thank you Jay, Anne and Alec - and your many supporters over the years!
Meet The Schutz Family and #TeamWally
Meet #TeamWally, the force of family and friends behind Wally Schutz, who are helping to raise awareness of Fragile X syndrome and FMR1-associated conditions and disorders.
The Bridges
The Bridges support the National Fragile X Foundation because of the life-changing opportunities they discovered for their daughter Caroline.
The Stedkes
For Kerry Stedke, creating awareness about Fragile X and becoming an advocate for individuals with intellectual disabilities is critically important.
Corporate Matching Gifts Make a Difference!
Corporate matching gifts amplify the impact of your donations to support the Fragile X community. Check to see if your employer has a matching gift program!
Marner Family Hosts 4th Annual QC Fragile X Golf Outing
The annual QC Fragile X golf outing, hosted by the Marner family, has been an incredibly inspiring demonstration of support. Thank you Andrea and Kevin - and your many supporters over the past four years!
The Heymans
Gail and her husband Lyons have been supporters of the NFXF since 2005 when she helped host the NFXF International Conference in Atlanta.
The Sarups
Jordan Sarup is 12 years old and has Fragile X syndrome. Meet a family who goes the extra mile to help their son — and every child living with Fragile X.
The Souders
Anne discovered the NFXF early in her quest for support for her family after her son Alec was diagnosed with Fragile X syndrome at age four.
The Silvers
The NFXF was there at the beginning of their Fragile X journey, and the Silvers want to ensure it’s there for everyone’s journey.
Carolyn and John Tomberlin Provide Matching Gift at International FX Conference Live Appeal
Carolyn and her husband John kicked off the Live Appeal at the NFXF International Fragile X Conference in July with a one-to-one matching challenge of up to $30,000.
NFXF Western MA Chapter Hosts Cork and Cafe Fundraiser
After a two-year pause due to COVID, NFXF Western Massachusetts Chapter raises $4,000 at 4th annual wine tasting fundraiser.
Heartland Chapter Hosts Annual X-Strides Run/Walk Fundraiser
NFXF Heartland - Iowa | South Dakota Chapter raises $6,500 at its annual X Strides Run/Walk event at the Briarwood Gold Course in Ankeny, IA.
Announcing Our 2022 NFXF Awardees
Our 2022 NFXF awards are in! Learn more about each award and about each of our awardees.
The Marner Family Hosts 3rd Annual Golf Outing in Support of NFXF
The 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success — in spite of the threat of a downpour!
The 5th Annual Bike to X Out Fragile X
The 5th Annual Bike to X Out Fragile X is in the books and another success in raising support and awareness of Fragile X in Iowa. Nancy Carlson, the NFXF Heartland Chapter leader and Fragile X mom tells us all about it.
Image (featured) by wagnercvilela from Pixabay