By Kristin Bogart

It was a beautiful early morning on the Briarwood Golf Course on October 1st, as 60 walkers/runners gathered to support Fragile X research and education. Jeff and Kristi Sexton once again hosted this annual event, which this year raised over $6,500 to support the NFXF Heartland – Iowa | South Dakota Chapter.

Water, coffee, donuts, protein balls and granola bars were provided to the 70+ friends and family members who participated. The walk/run was on the golf course paths and went through various neighborhoods of Ankeny. There were kids on razors, dogs, strollers, and all types of walkers! Food and drinks were available for all to enjoy afterwards in the club house. Some of the early morning golfers even contributed!

Fun fact: Finlay Sexton has a “Fin Fan” Club which includes his former teachers and aids that continue to show up for him every year! Way to go Finlay!

2022 Heartland X Strides participants at the event finish line on a beautiful clear day.
Two teenage girls participating in a Fragile X syndrome X Strides run/walk event and fundraiser.
Registration table at the Heartland X Strides event and fundraiser for Fragile X syndrome.
X Strides run/walk event and fundraiser participants walking on a sidewalk through a lovely park.

Thank you to Kristi and Jeff Sexton and the Heartland community for your ongoing support of the the NFXF and the Fragile X community! Together, We’re Stronger!

To learn more about NFXF chapters and to locate a contact near you, visit the NFXF Community Support Network.

author
Kristin Bogart, Senior Director, Development and Communications

Kristin Bogart
Kristin joined the NFXF team in 2019. She has over 20 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two teenage sons and in the company of friends, and enjoys gardening, running, and hiking in the Santa Cruz mountains.

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  • Older man fist bumping little boy with text "DOD Grant Awarded for a FXTAS Trial"

DoD grant awarded for a FXTAS trial

By |Sep 1, 2023|

PureTech Health has been awarded a DoD grant of up to $11.4 million from the DoD for their trial of LYT-300, oral formulation of allopregnanolone, in people with Fragile X-associated tremor/ataxia syndrome (FXTAS).