Western Massachusetts Hosts Rollerskating Event

By |2017-04-07T11:30:42-04:00Apr 7, 2017|Community Support Network, Western Massachusetts|

[mpc_image preset="preset_2" image="27485" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]On April 2, Western Massachusetts Fragile X hosted a rollerskating event for local families. The event was private, and to ensure [...]

Passion for Community and Support Key to Success for Annual Conference

By |2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

We Rock The Spectrum Family Day

By |2016-12-09T09:09:08-05:00Dec 9, 2016|Community Support Network, St. Louis, St. Louis Events|

[mpc_image preset="preset_2" image="26090" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]On Sunday, December 4 the Fragile X Resource Center of Missouri hosted an afternoon full of ziplining, bouncing, painting, swinging and dressing up [...]

Introducing… The Community Support Network

By |2014-03-02T06:57:45-05:00Mar 2, 2014|Community Support Network|

One of the most meaningful experiences for a Fragile X family is to meet another family and know you are not alone in this journey. At the National Fragile X Foundation, our mission is to serve you by connecting and supporting individuals and families through our family support network.

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