The weather was beautiful for our first X Strides [...]
On May 5, the Greater Chicago Fragile X Group held [...]
We had a wonderful walk with about 70 people in [...]
12 Finger Outdoor Adventure brought their rock climbing gear and [...]
On April 2, Western Massachusetts Fragile X hosted a [...]
When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”
With the support of their community, NFXF board members and outstanding CSN leadership, Greater Atlanta Fragile X hosted an amazingly successful Brew Fest event for the second year in a row.
What happens when you combine friendly competition and a campaign to raise awareness of Fragile X? Tremendous success! Western Massachusetts participated in the 2nd annual Hadley Cornhole Championship, raising awareness and over $1100 for NFXF!
On Sunday, December 4 the Fragile X Resource Center of [...]
On September 25 to 27, 58 [...]
The Awards began in 2014 as a way [...]
https://vimeo.com/42276975 We’re excited to know that Mission to Lars [...]
The world can look like a lonely place when first [...]
One of the most meaningful experiences for a Fragile X family is to meet another family and know you are not alone in this journey. At the National Fragile X Foundation, our mission is to serve you by connecting and supporting individuals and families through our family support network.
Saturday, November 16 was all about raising awareness and funds across Texas! The Texas Fragile X Association (Dallas/FT Worth) the Fragile X Alliance of Texas – Houston, the Fragile X Alliance of Texas – San Antonio all hosted a walk!