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Passion for Community and Support Key to Success for Annual Conference

By |2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

A Full Fall Calendar for Fragile X Groups!

By |2013-09-05T13:01:44-04:00Sep 5, 2013|Central Connecticut, St. Louis|

With children back in school, fall is a popular time for educational seminars and workshops. One of the many great things our LINKS groups do is to provide educational opportunities for families and professionals. Attending an educational event can make a huge difference in the school year. Check out the following list of upcoming educational seminars—and don’t forget there are plenty of fall social events and fundraisers coming up, too!