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A Mom's Introduction to Advocacy Day

By |2012-02-07T12:29:49-05:00Feb 7, 2012|2012, Guest Submission|

The following is a personal blog post written by Melissa Welin, Co-Founder of the Fragile X LINKS Group of Eastern Massachusetts giving an introduction to Advocacy Day through the eyes of a first time advocate. ...

Best Cousins Make Best Buddies

By |2011-11-22T09:38:10-05:00Nov 22, 2011|Guest Submission|

By Gail Heyman It was an exciting weekend in Washington, DC when Scott Heyman joined his cousin, Allison Gordon, for the 2011 Audi Best Buddies Challenge. They participated in the 100K bike ride, ...

Focus on Fundraisers: July

By |2011-07-29T13:05:00-04:00Jul 29, 2011|Guest Submission, Uncategorized|

Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness.  Guests ...

The Team Fragile X Slot Car

By |2011-06-10T15:26:00-04:00Jun 10, 2011|Guest Submission|

We have a friend in Italy named Richard Bennett who participates in slot car racing for Team Fragile X. Check out the sweet FX custom-designed Lancia Stratos. An earlier design for this car was used ...