Early Check is a new research study, led by RTI [...]
Several years ago, NFXF Advocates were successful in adding Fragile [...]
In March, over 150 NFXF Advocates descended onto Capitol Hill [...]
There is strength in numbers, which is why we work [...]
This Tuesday, more than 150 National Fragile X Foundation volunteers [...]
Thanks to the hard work of NFXF Advocates years ago, [...]
Last year, the National Institutes of Health (NIH) funded $46 [...]
Last night, Congress passed the RAISE Family Caregivers Act. The [...]
Health Insurance, Medicaid, and SSI/SSDI These are three issues [...]
NFXF advocates are out in force during the August [...]
You can send the NFXF letter (link) to staff members you have an existing relationship with or deliver it personally to staff or a member of Congress at an upcoming Town Hall or other local event.
June 13, 2017 Dear Members of Congress: The National Fragile [...]
The President released his more detailed Fiscal [...]
This week, Congress should wrap up the Fiscal Year 2017 appropriations – just seven months into the fiscal year. The agreement includes an additional $2 billion for the NIH, which should translate into more funds available for Fragile X research. It also signals that Congress does not have an appetite to cut NIH funding 30%, as proposed in the President’s Fiscal Year 2018 budget outline.
Congress is moving forward [...]