July is National Fragile X Awareness Month

   2020 FRAGILE X AWARENESS DAY: Wednesday, July 22, 2020

On July 12, 2000, the United States Senate designated July 22 as National Fragile X Awareness Day. Each year, the NFXF and the Fragile X community celebrate all of July as National Fragile X Awareness Month, with the goal of expanding public awareness and educating those who are in a position to help make a difference. We strive to do this every day, but once a year, in July, we bang our drum even louder to raise awareness about some very Xtraordinary people.

Donation buttonThat’s right, our 2020 theme is all about being Xtraordinary.

Anything new on the site for Awareness Month you’ll find here — and on social media, and in your inbox (sign up here if you haven’t already!).

Frank Perez and his children

Xtraordinary Individuals

We asked to learn more about the Xtraordinary individuals in your lives, and we are hearing from parents, professionals, friends, co-workers, grandparents, employers, cousins, doctors, and mentors (to name just a few), and more are coming in every day!

  • 2020 Awareness packet contents

2020 Fragile X Awareness Packets

July is National Fragile X Awareness Month. To help you raise awareness we pulled together some materials that are free to download and use: posters, Zoom backgrounds, coloring sheets, flyer, and “Know Me” cards.

  • Xtraordinary logo surrounded by examples of xtraordinary people, like a mother, doctor, teacher, therapist, friend, uncle, son

Tell Us About Someone Xtraordinary In Your Life

To get ready for the big month ahead, we wanted to ask you all to tell us about someone Xtraordinary in your life related to Fragile X. Submit your nominee and and we'll let them know plus we'll use it during Awareness Month!