The National Fragile X Foundation

The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.

Our Mission & Vision

Our mission is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Awareness

To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

Learn more about advocacy »