The National Fragile X Foundation

The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.

Our Mission & Vision

Our mission is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.


To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

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To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

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To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Learn more about community »