Financials & Impact Report

The National Fragile X Foundation was founded in 1984 as a public, non-profit 501(c)(3) charitable organization. To give our donors confidence that their donations are being used wisely to support Fragile X families, we provide audited financial statements, government certifications, independent certifications, and an annual impact report based on our audited financial statements. We are funded through individual contributions.

All of the available reports and documents below are in PDF format.

Report 2020

Our impact report shows the impact we had for 2020 across all of our mission areas through your donations, your volunteer work, and your continued participation.


Strategic Priorities 2019–2023

For the past 36 years, the NFXF has had a tremendous impact, but what is more exciting is the potential the next four years hold. See what we have planned to accomplish with your help.


Financial Statements

Our independently audited financial statements and our IRS 990 are provided so you can see how your donations serve Fragile X families with community, education, awareness, and research.

IRS 990 (PDF)

Non-Profit Certification

The NFXF is authorized to operate as a non-profit in all 50 states, territories, and the District of Columbia. Our federal 501(c)(3) and Florida certifications are provided.

2020 revenue and expenses pie charts

Contact Information

If you have any questions or concerns, please contact us via email, mail, or phone:

National Fragile X Foundation
1861 International Drive Suite 200
McLean, VA 22102

Phone: +1 (202) 747-6210
Toll Free: +1 (800) 688-8765
Fax: +1 (202) 747-6208
EIN: 84-0960471

Executive Director: Linda Sorensen

See the whole team, including staff, board of directors, volunteer leaders, and scientific advisors.

* GuideStar’s Gold Seal of Transparency is earned by completing five questions around an organization’s strategies, progress, and results, known as Charting Impact. Charting Impact encourages strategic thinking about how an organization intends to achieve its goals. The end result is a report that lets nonprofits share concise, detailed information about plans and progress with key stakeholders, including the public. This data is provided directly by nonprofits to GuideStar via their Nonprofit Profile.