Financials & Impact Report

The National Fragile X Foundation was founded in 1984 as a public, non-profit 501(c)(3) charitable organization. To give our donors confidence that their donations are being used wisely to support Fragile X families, we provide audited financial statements, government certifications, independent certifications, and an annual impact report based on our audited financial statements. We are funded through individual contributions.

Report 2022

Our impact report shows the impact we had in 2022 across our four strategic priority areas, made possible by your donations, your volunteer work, and your continued participation.

Financial Statements

Our independently audited financial statements and our IRS 990 are provided so you can see how your donations serve Fragile X families with community, education, awareness, and research.

IRS 990 (PDF)

Non-Profit Certification

The NFXF is authorized to operate as a non-profit in all 50 states, territories, and the District of Columbia. Our federal 501(c)(3) and Florida certifications are provided.


Contact Information

If you have any questions or concerns, please contact us via email, mail, or phone:

National Fragile X Foundation
1012 14th Street NW, Suite 500
Washington, DC, 20005

Phone: +1 (202) 747-6210
Toll Free: +1 (800) 688-8765
EIN: 84-0960471

Executive Director: Hilary Rosselot

See the whole team, including staff, board of directors, volunteer leaders, and scientific advisors.

* GuideStar’s Gold Seal of Transparency is earned by completing five questions around an organization’s strategies, progress, and results, known as Charting Impact. Charting Impact encourages strategic thinking about how an organization intends to achieve its goals. The end result is a report that lets nonprofits share concise, detailed information about plans and progress with key stakeholders, including the public. This data is provided directly by nonprofits to GuideStar via their Nonprofit Profile.