Denny and his wife, Marcia, are proud parents of Angela, 40, and Aaron, 38. Aaron was diagnosed with Fragile X syndrome when he was 10 years old, thanks to a very observant elementary school teacher. Aaron’s diagnosis was a real blessing as his education could have been a disaster! He had a wonderful functional education that helped him graduate from high school in Kansas City, Missouri.
After moving to Waverly, Iowa, in 2003, Aaron was able to live by himself with agency help and has a job in dining services at Wartburg College. Aaron also helps manage the Wartburg College football team, which is the true love of his life! There is a documentary called, “Not So Fragile” that shares much of Aaron’s journey.
“I am so excited to be a member of the board of directors for the NFXF! I’m hoping to learn and share a lot — both in experience as a parent of a Fragile X son and in wisdom gained from my fundraising career of 14 years. I look forward to continuing to learn more about Fragile X, especially in research for the full-mutation Fragile X adult!”