Researchers at the UC Davis MIND Institute are examing changes in the brain and cognition associated with aging, in males with the Fragile X premutation compared to those without.
Most children who come to see me have a combination of developmental delays, communication challenges and symptoms of anxiety, resulting in frequent tantrums. It is common for parents to share details about their daily struggles.
Parents and other caregivers must consider many factors as young people with Fragile X syndrome approach the transition from high school to adulthood.
Every day Jayne Dixon Weber, Director, Education and Support Services at the NFXF, responds to emails and phone calls from parents and caregivers from around the world who have questions about Fragile X. Today we [...]
Licensed Marriage and Family Therapist Diane Simon Smith discusses the amount of stress that is often placed upon a marriage when a couple has a child (or children) with fragile X syndrome. Many parents may worry that even the strongest marriages may buckle – or worse – under the intense demand of raising a child with special needs.
Now that I’ve had several full nights of sleep since the conference ended, I’ve finally had time to reflect on an amazing conference. We made so many beautiful memories there that it seems impossible to [...]
Individuals with FXS often have difficulty establishing meaningful friendships. Limited social skills, social anxiety and an often narrow range of interests contribute to these difficulties. Various interventions can increase the social network of those with [...]
The NFXF is proud to announce three different scholarship opportunities available for the upcoming International Fragile X conference in Cincinnati, OH. The conference is a valuable opportunity for families to make connections and learn. It’s [...]
Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2500 each through the Summer Student Fellowship Research Fund. This award is meant to introduce undergraduate students, or students [...]
We started November giving thanks for a couple who have spent a lifetime helping the Fragile X community. Margaret and Marty Israel have been volunteering for the Fragile X community for 37 years. On November [...]
We had a wonderful walk with about 70 people in attendance. The course was beautiful as was the weather. Attendees enjoyed a catered lunch on the patio. It was fun to connect with families and [...]
The Child and Adolescent NeuroDevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a pilot research study on Fragile X syndrome, sponsored by Fulcrum Therapeutics. The goal of this study is to [...]
The National Fragile X Foundation is conducting a short five-minute survey to find the aspects of Fragile X syndrome (FXS) that have the greatest impact on the lives of people with FXS and their families/caretakers. [...]
Fifty-two friends and family joined us for an amazing 7th annual Cork and Cafe fundraiser! We were able to have the patio curtains open to give a feel of being outside with seven pouring stations [...]
Both Target and Tommy Hilfiger are announcing new adaptive clothing to accommodate the needs of people with disabilities. Target releases their adaptive clothing for children under their Cat & Jack brand. These clothes include removable [...]