Author: NFXF

Building Social Supports: A Guide for Parents

Quality Friendship

Individuals with FXS often have difficulty establishing meaningful friendships. Limited social skills, social anxiety and an often narrow range of interests contribute to these difficulties. Various interventions can increase the social network of those with FXS. The following ideas are provided to help such individuals and their families. Building Early Social Skills Parents are in

Scholarships for the 2018 NFXF International Fragile X Conference

The NFXF is proud to announce three different scholarship opportunities available for the upcoming International Fragile X conference in Cincinnati, OH. The conference is a valuable opportunity for families to make connections and learn. It’s important to us that we assist families who would otherwise be unable to attend. We are grateful to the community

CRISPR, a New Genome Editing Tool: Could it Work for Fragile X-Associated Syndromes?

Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2500 each through the Summer Student Fellowship Research Fund. This award is meant to introduce undergraduate students, or students in professional training programs, to research in the Fragile X field, by providing funding for a summer project. We understand

CANDI & UMASS: Pilot Study for Children with Fragile X Syndrome

The Child and Adolescent NeuroDevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a pilot research study on Fragile X syndrome, sponsored by Fulcrum Therapeutics. The goal of this study is to test new ways of measuring results in Fragile X clinical trials. Eligible participants will have 3 study visits — 2

Target and Tommy Hilfiger introduce adaptive clothing for people with special needs

Both Target and Tommy Hilfiger are announcing new adaptive clothing to accommodate the needs of people with disabilities. Target releases their adaptive clothing for children under their Cat & Jack brand. These clothes include removable sleeves, openings at the belly and more. The brand also offers sensory-friendly clothing with flat seams and free from tags. Cat

Study: Girl Behavior and NeuroDevelopment (Girl BAND)

Researchers at Stanford University are studying brain development in relation to behavior, cognition, and mood in girls with fragile X syndrome. The project is designed to improve our understanding of brain and behavioral growth in girls during a critical time in their development. Information gained from this research will improve our understanding of learning, behavioral

Studies of Brain/Body Interaction at Rutgers University

What is the study for? The goal of this study is to provide a comprehensive profile of the nervous systems in order to understand interactions between the brain and body, while an individual walks naturally and while breathing at a slow controlled pace. We aim to study these interactions among a variety of populations, from

Study: Come Interact and Play Music with our Avatar!

(Above) Example of participant interacting in real-time with our avatar. What is the study for? This study investigates the interactions between an avatar and a person in our custom body suit. We investigate, in a playful setting, how to improve the person’s body awareness to improve motor control.Who can participate? Participation is open to all,

Southeast Pennsylvania Brings Experts for a Great Conference!

It had been a while since Fragile X Southeast Pennsylvania held an educational conference and this one did not disappoint! Approximately fifty people gathered to hear Medical, Educational and Behavioral Interventions for Fragile X. We went back to basics with Brenda Finucane, MS, LGC who provided us with a refresher of the genetics and underlying