Blog

/Blog

Postdoctoral Training Program in Intellectual and Developmental Disabilities Research Position Openings

The Waisman Center at the University of Wisconsin-Madison is recruiting postdoctoral trainees. The Waisman Center hosts a Fragile X clinic and conducts research on Fragile X-related disorders, such as this recently published research on other premutation carrier issues.

By | 2019-11-15T10:15:06+00:00 Nov 15, 2019|Blog, Research|Comments Off on Postdoctoral Training Program in Intellectual and Developmental Disabilities Research Position Openings

What is Early Check?

Early Check is a unique voluntary research study that screens newborns for Fragile X syndrome and the premutation and Spinal Muscular Atrophy free of charge. It gathers important information and hopes to show the benefits of early testing and treatment and improve newborn screening (NBS) across the United States.

By | 2019-09-13T16:22:13+00:00 Sep 13, 2019|Blog, Research|Comments Off on What is Early Check?

Chicago X Strides 2019 Photo Gallery

We had an amazing first annual X Strides Chicago on July 14, 2019.  Everyone that volunteered, ran, walked, organized a team, and donated made it a success. We were a force to be noticed that morning - raising awareness as people asked, What is Fragile X? View photos here.

By | 2019-07-25T22:35:13+00:00 Jul 25, 2019|Blog, X Strides|Comments Off on Chicago X Strides 2019 Photo Gallery

Faces of Fragile X: Nicholas

What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

By | 2019-07-03T13:19:47+00:00 Jul 3, 2019|Blog, Faces of Fragile X|Comments Off on Faces of Fragile X: Nicholas