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From One Caretaker to Another

By |2020-09-02T15:13:11-04:00Aug 6, 2020|Blog|

Being the caretaker of someone with special needs, such as Fragile X syndrome, can be daunting. Isabel looks back at her journey, sharing advice and encouragement for new caregivers or those who have been doing it for years.

Shining a Light on NFXF’s Global Impact

By |2020-08-05T14:02:38-04:00Jul 29, 2020|Blog, International|

In 2019, Dr. Tabatadze and her colleagues ─ a small team of doctors ─ established the first local Fragile X laboratory in Georgia. They conducted a pilot study and tested 250 patients with autism spectrum disorder (ASD) and intellectual disabilities; the study yielded 11 positive results for Fragile X.

NFXF 2020 Virtual Graduation Ceremony

By |2020-08-03T10:43:53-04:00Jun 6, 2020|Blog|

To honor all Fragile X self-advocates and siblings who are being promoted/graduating in 2020, we held a virtual graduation ceremony. Gregg Harper, former Member of Congress from Mississippi and a Fragile X dad, gave a commencement address. 

How to Prepare for a Telehealth Visit

By |2020-08-07T17:35:33-04:00Apr 24, 2020|Blog|

Drs Rebecca Shaffer and Ernie Pedapati tell you how to prepare for your telehealth visit, including behavioral checkups. They are with Fragile X Clinic at Cincinnati Children's Hospital. Their advice is applicable to all visits.

Can I use CBD to treat Fragile X syndrome?

By |2019-12-16T11:01:02-05:00Dec 13, 2019|Blog|

Craig Erickson, MD, the Director of the Cincinnati Fragile X Research and Treatment Center was asked by the National Fragile X Foundation (NFXF) to discuss the use of cannabidiol (CBD) for people with Fragile X syndrome (FXS) - to answer the questions around, Can I Use CBD to treat Fragile X syndrome.

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