Peer-Reviewed Medical Research Program’s FY 24 Funding Opportunities for Researchers — Webinar
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
Announcing FY 2024 federal research funding opportunities across six award categories available for all Fragile X-associated conditions and disorders.
Are you an adult with a family member who has been diagnosed with Fragile X syndrome (FXS) or with the FXS premutation? Help us learn about your experiences with the FXS screening process. Researchers [...]
Researchers at the University of Maryland are looking to understand how children with intellectual disabilities grieve the loss of a loved one. Researchers are currently gathering information on how children with intellectual disabilities experience [...]
Do you have a 5 to 10 year old child with Fragile X syndrome? Participate in this remote research study and help researchers understand how children learn words. Researchers at the Neurodevelopmental Language and [...]
Are you a Black or Hispanic woman raising a child with Fragile X syndrome? Researchers want to hear about your experiences. The South Carolina Family Experiences Lab is conducting 30-minute interviews to learn about [...]
Authors: Carrie R. Jonak , Ernest V. Pedapati, Lauren M. Schmitt, Samantha A. Assad , Manbir S. Sandhu, Lisa DeStefano, Lauren Ethridge, Khaleel A. Razak, John A. Sweeney , Devin K. Binder and Craig [...]
Authors: Andy King, Nadia Ali, Cecelia Bellcross, Fabienne Ehivet, Heather Hipp, Jessica Vaughn, Emily G. Allen Summary: An estimated 1 in 291 women carry a fragile X premutation (PM) and there is little evidence [...]
By Mya Jones Authors: Rebecca C Shaffer, Debra L Reisinger, Lauren M Schmitt, Martine Lamy, Kelli C Dominick, Elizabeth G Smith, Marika C Coffman, Anna J Esbensen Summary: A large portion of individuals with Fragile [...]
Many families struggle with helping their loved ones with intellectual and developmental disabilities maintain good oral hygiene. We've pulled together some helpful resources on dentistry for families and medical professionals.
The most effective way to support someone living with FXS in any setting is to maximize their focus, cooperation, and enjoyment. Here's more on the strengths and challenges for individuals with Fragile X, and how to make the most of any experience.
This summary gives a broad overview of the main themes discussed at the 5th International Conference on FMR1 Premutation in early 2023.
Learn more from Dr. Liz Berry-Kravis about the important updates to the Tetra trials to make participation easier!
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Highlighting the FMR1 and Related Conditions Clinic at the Kennedy Krieger Institute, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)