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Let the Awareness Continue!

By |2021-08-13T18:15:23-04:00Aug 13, 2021|Blog|

It looks like in many places that we are back to wearing masks or will be soon. It may be for school, but in many cases, masks are being required for any activity that is indoors. I am guessing that, in the past couple of months, many of us got used to not wearing masks. So, for at least in our family, it is going to be a transition back to wearing them.

LIVE: X Strides Closing Ceremony

By |2021-07-31T16:39:31-04:00Jul 29, 2021|Blog|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress

By |2021-06-28T11:04:59-04:00Jun 24, 2021|Blog, Carriers, Webinar|

Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.

In Memory of Steve Warren

By |2021-06-09T13:02:40-04:00Jun 9, 2021|Blog|

As a geneticist and academic, Warren’s contributions to the understanding of Fragile X and to the broader Fragile X community are immense. In addition to being a gifted scientist, he was an outstanding leader, mentor, and friend who will be greatly missed.

Webinar: Females and Fragile X Syndrome

By |2021-08-19T17:03:04-04:00Jun 9, 2021|Blog, FXS, Webinar|

Dr. Marcia Braden joins us to discuss Females and Fragile X syndrome (FXS). This webinar helps you better understand the features associated with the syndrome. Information processing, cognitive strengths and weakness as well as social issues are identified. Strategies to address common challenges are also discussed.

Welcome to Our Newest Board Members

By |2021-06-04T10:03:56-04:00Jun 4, 2021|Blog|

On behalf of the NFXF Board of Directors, I am excited to welcome our newest class of directors for 2021. This group of individuals have all been active members of our Fragile X community for many years and contribute in all areas of outreach.

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