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From One Caretaker to Another

By |2020-09-02T15:13:11-04:00Aug 6, 2020|Blog|

Being the caretaker of someone with special needs, such as Fragile X syndrome, can be daunting. Isabel looks back at her journey, sharing advice and encouragement for new caregivers or those who have been doing it for years.

Shining a Light on NFXF’s Global Impact

By |2020-08-05T14:02:38-04:00Jul 29, 2020|Blog, International|

In 2019, Dr. Tabatadze and her colleagues ─ a small team of doctors ─ established the first local Fragile X laboratory in Georgia. They conducted a pilot study and tested 250 patients with autism spectrum disorder (ASD) and intellectual disabilities; the study yielded 11 positive results for Fragile X.

NFXF 2020 Virtual Graduation Ceremony

By |2020-08-03T10:43:53-04:00Jun 6, 2020|Blog|

To honor all Fragile X self-advocates and siblings who are being promoted/graduating in 2020, we held a virtual graduation ceremony. Gregg Harper, former Member of Congress from Mississippi and a Fragile X dad, gave a commencement address. 

How to Prepare for a Telehealth Visit

By |2020-08-07T17:35:33-04:00Apr 24, 2020|Blog|

Drs Rebecca Shaffer and Ernie Pedapati tell you how to prepare for your telehealth visit, including behavioral checkups. They are with Fragile X Clinic at Cincinnati Children's Hospital. Their advice is applicable to all visits.

Can I use CBD to treat Fragile X syndrome?

By |2019-12-16T11:01:02-05:00Dec 13, 2019|Blog|

Craig Erickson, MD, the Director of the Cincinnati Fragile X Research and Treatment Center was asked by the National Fragile X Foundation (NFXF) to discuss the use of cannabidiol (CBD) for people with Fragile X syndrome (FXS) - to answer the questions around, Can I Use CBD to treat Fragile X syndrome.

What is Early Check?

By |2019-09-13T16:22:13-04:00Sep 13, 2019|Blog, Research|

Early Check is a unique voluntary research study that screens newborns for Fragile X syndrome and the premutation and Spinal Muscular Atrophy free of charge. It gathers important information and hopes to show the benefits of early testing and treatment and improve newborn screening (NBS) across the United States.

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