We kicked off the 19th NFXF International Fragile X Conference with an incredible keynote address from Carly Dolan, Jill Dolan, David Tillman, and Tamaro Hudson, sharing their Xtraordinary stories.
It was so inspirational, we couldn’t keep it to ourselves! Get ready to be inspired, empowered, and uplifted by our panelists’ resilience, courage, and unwavering determination.
2024 IFXC Keynote: Embracing the Xtraordinary
Thank you to Carly, Jill, David, and Tamaro for sharing such heartwarming, vulnerable messages of hope. We are so fortunate to be surrounded by people who embrace the Xtraordinary daily.
Want to meet more Xtraordinary individuals? Check out more Xtraordinary Individuals and submit your own story.
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Panel Discussion — Gene Therapy
As gene therapies continue to enter rare disease and Fragile X spaces, we know that our community has become increasingly curious about what this means for Fragile X. At the 19th NFXF International Fragile X Conference, experts shared their thoughts on gene therapies and their future in the Fragile X world.
2024 Industry Updates — Presentation
Three of our industry partners working on treatments for Fragile X syndrome (FXS) presented updates on their research at the 19th NFXF International Fragile X Conference on July 27, 2024. Presenters included representatives from Tetra Therapeutics, Harmony Biosciences, and Spinogenix.