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So far Hilary Rosselot has created 30 blog entries.

NFXF Webinar: 2021 Industry Updates

By |2021-10-07T14:11:53-04:00Sep 20, 2021|Research|

We held an NFXF Webinar with three of our industry partners working on treatments for Fragile X syndrome. Each shared the most up-to-date information on their research project(s) in a way that is understood by those who aren’t steeped in drug research day in and day out. A short Q&A followed each presentation.

PFDD Meeting Community Forum

By |2021-01-22T14:03:23-05:00Jan 21, 2021|Research|

The Patient-Focused Drug Development (PFDD) meeting on Fragile X syndrome is just around the corner! We need caregivers and self-advocates to participate to make this a valuable meeting. This will help you understand what to expect and what the goal is and how to share your story.

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