6-18 month old boys and girls with the full mutation needed for a research study Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Who can participate? Boys and girls [...]
Adults (older than 18), Males and Females, Families affected by Fragile X Needed for a Survey Why are we doing this research? The University of Kansas Medical Center is conducting a survey to learn about the medical and mental health care [...]
Children losing primary (baby) teeth, male or female, Fragile X syndrome needed for a research study Why are we doing this research? Dr. Lawrence T. Reiter, a researcher from the University of Tennessee Health [...]
Have you been diagnosed with FXTAS and want to participate in an exercise trial? See the below flyer from Dr. O’Keefe’s lab at Rush University for details. View More Opportunites VIEW ALL [...]
Individuals ages 50-80 with the FMR1 gene premutation with or without FXTAS are needed for a research study Why are we doing this research? The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral [...]
The UC Davis MIND Institute is currently recruiting study research participants. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.
This survey will help support families in the Early Check study in NC whose newborns have been diagnosed with Fragile X and inform the design of an early intervention program for these babies.
RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.
We have preliminary evidence that metformin, a common type 2 diabetes medication, is beneficial for language, cognition, and behavior in both children and adults with Fragile X Syndrome.
A survey to measure levels of behavior. When someone with FXS is experiencing anxiety, describe what you see and hear, and how the experience impacts your/their quality of life.
Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.
Our goal is to better understand the different mechanisms within the brain that contribute to the development of psychiatric conditions, including depression, so we can establish better prevention and intervention efforts within this population.
This is a voluntary, and completely anonymous, research survey for women and men who have had a child, or at risk of having a child, with a genetic childhood disorder.
The goal of the study is to learn more about how certain abilities, types of experiences, and biology affect language abilities in adulthood for both males and females with Fragile X syndrome.
We are attempting to further assess Metformin’s safety and benefits, which has been shown to improve the symptoms and difficulties that individuals with FXS experience, including delayed language/cognition, excessive eating, obesity, hypogonadism, and delayed puberty.
