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Fragile X Premutation Carrier Study at USC

The University of South Carolina is conducting a research study focusing on the range of language, social, and cognitive features that may be associated with variations on the FMR1 gene. Women age 35-75 who are carriers of the Fragile X premutation may be eligible to participate.

By |2020-03-22T22:29:57-04:00Mar 11, 2020|Opportunities for Families|Comments Off on Fragile X Premutation Carrier Study at USC

Study to Learn About the Cognitive Profile of Children with a Full Mutation of Fragile X

An Alliant International University clinical psychology doctoral candidate is conducting a research study to learn about the cognitive profile of children with a full mutation of Fragile X. Males and transgender females between the age of 8 and 12 may be eligible to participate.

By |2020-03-22T22:27:58-04:00Mar 11, 2020|Opportunities for Families|Comments Off on Study to Learn About the Cognitive Profile of Children with a Full Mutation of Fragile X

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.

By |2020-03-23T17:12:25-04:00Mar 11, 2020|Opportunities for Families|Comments Off on Parent Survey: Children’s Behavioral Strengths and Challenges

Survey: Medical and Mental Needs of Families Living with Fragile X

The University of Kansas Medical Center is conducting a survey to learn about the medical and mental health care needs of individuals and families affected by Fragile X syndrome, premutation carriers, and undiagnosed family members. Persons 18 years and over may be eligible.

By |2020-03-22T23:58:52-04:00Jan 9, 2020|Opportunities for Families|Comments Off on Survey: Medical and Mental Needs of Families Living with Fragile X

Fragile X Premutation Carrier Study at University of Kansas

The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with premutations of the Fragile X gene, FMR1. Individuals ages 50–80 with the FMR1 gene premutation with or without FXTAS may be eligible to participate.

By |2020-03-24T12:35:27-04:00Jan 9, 2020|Opportunities for Families|Comments Off on Fragile X Premutation Carrier Study at University of Kansas

Study: Family Relationships and Parenting of Children with FXS

The UC Davis MIND Institute is currently recruiting study research participants. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.

By |2019-10-28T15:45:01-04:00Oct 22, 2019|Opportunities for Families|Comments Off on Study: Family Relationships and Parenting of Children with FXS
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