Opportunities for families

/Opportunities for families

Study: Family Relationships and Parenting of Children with FXS

The UC Davis MIND Institute is currently recruiting study research participants. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.

By | 2019-10-28T15:45:01+00:00 Oct 22, 2019|Opportunities for families|Comments Off on Study: Family Relationships and Parenting of Children with FXS

Early Development of Young Children with Fragile X in North Carolina

RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.

By | 2019-10-11T10:15:58+00:00 Sep 18, 2019|Opportunities for families|Comments Off on Early Development of Young Children with Fragile X in North Carolina

Visual Perception Study

Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.

By | 2019-09-23T17:47:39+00:00 Jun 12, 2019|Opportunities for families|Comments Off on Visual Perception Study

Purdue University: Brain and Behavior Study

Our goal is to better understand the different mechanisms within the brain that contribute to the development of psychiatric conditions, including depression, so we can establish better prevention and intervention efforts within this population.

By | 2019-07-16T19:11:46+00:00 Jun 11, 2019|Opportunities for families|Comments Off on Purdue University: Brain and Behavior Study

Canada: Metformin Clinical Trial

We are attempting to further assess Metformin’s safety and benefits, which has been shown to improve the symptoms and difficulties that individuals with FXS experience, including delayed language/cognition, excessive eating, obesity, hypogonadism, and delayed puberty.

By | 2019-07-16T18:51:05+00:00 May 21, 2019|Opportunities for families|Comments Off on Canada: Metformin Clinical Trial

Research Study on Language and Brain Imaging

The Waisman Center at the University of Wisconsin-Madison is recruiting boys with fragile X syndrome and autism spectrum disorder for a study on language and communication skills and Magnetic Resonance Imaging (MRI). The purpose of this research is to better understand how children with fragile X and children with ASD use language. All of the testing is done at the Waisman Center, and can be scheduled at your convenience. 

By | 2019-07-24T20:32:47+00:00 Mar 11, 2019|Opportunities for families|Comments Off on Research Study on Language and Brain Imaging
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