Opportunities for families Archives — National Fragile X Foundation

Online Interview Market Research Opportunity

Looking for: Parents/caregivers of children (males and females) with the [...]

By NFXF| 2018-08-02T11:20:16+00:00 June 26th, 2018|Opportunities for families|Comments Off

Research: Did you grow up in Iowa, or know someone who did?

Are you, or someone you know, a carrier of the [...]

By NFXF| 2018-06-20T17:33:01+00:00 June 20th, 2018|Opportunities for families|Comments Off

Survey: Parent decision-making to inform Fragile X syndrome clinical drug trials

New survey study to investigate the decision-making process among parents [...]

By NFXF| 2018-10-03T15:09:00+00:00 June 4th, 2018|Opportunities for families|Comments Off

Study: FX-LEARN – Language Learning in Children with FXS

AFQ056 for Language Learning in Children with Fragile X Syndrome [...]

By NFXF| 2018-09-11T14:28:50+00:00 May 11th, 2018|Opportunities for families, Research|Comments Off

St. John’s Study: Positive Family Intervention for Families of Children with Fragile X Syndrome: Using Telehealth to Reduce Problem Behavior and Improve Maternal Mental Health

Free Treatment Study! Are you a mother of a child [...]

By David Salomon| 2018-05-08T21:40:07+00:00 April 5th, 2018|Opportunities for families, Research|Comments Off

MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy

MGH/Harvard is recruiting adult males with Fragile X Syndrome, 18 [...]

By David Salomon| 2018-05-08T22:05:42+00:00 April 5th, 2018|Opportunities for families, Research|Comments Off

Boston Children’s Hospital Study: Neural Markers in Fragile X Syndrome

The purpose of this study is to improve our understanding [...]

By David Salomon| 2018-10-03T15:11:53+00:00 April 5th, 2018|Opportunities for families, Research|Comments Off

Emory Study: Men with a premutation

FXTAS: Why do some people develop tremor and balance issues [...]

By David Salomon| 2018-05-08T22:14:22+00:00 March 20th, 2018|Opportunities for families, Research|Comments Off

Study: Residential and Respite Care Services Survey

A study by Vanderbilt Kennedy Center A study for family [...]

By NFXF| 2018-05-08T22:45:03+00:00 February 28th, 2018|Opportunities for families|Comments Off

Stanford: Telehealth Study for Disruptive Behavior

Who Can Participate? Boys with a diagnosis of fragile [...]

By NFXF| 2018-05-08T22:41:43+00:00 February 16th, 2018|Opportunities for families|Comments Off

Brief Social Skills Training for Boys with Developmental Disabilities

Who Can Participate? Boys between 8-18 years old [...]

By NFXF| 2018-05-08T22:33:48+00:00 January 26th, 2018|Opportunities for families, Research|Comments Off

Memory Study on Fragile X Syndrome

If you have a son or daughter with Fragile X [...]

By NFXF| 2018-06-11T12:42:39+00:00 January 11th, 2018|Opportunities for families, Research|Comments Off

Assessment of Glutamatergic System in Fragile X syndrome

Massachusetts General Hospital A research study at Massachusetts General [...]

By NFXF| 2018-01-04T17:52:24+00:00 January 3rd, 2018|Opportunities for families, Research|Comments Off

CANDI & UMASS: Pilot Study for Children with Fragile X Syndrome

The Child and Adolescent NeuroDevelopment Initiative (CANDI) at the University [...]

By NFXF| 2018-10-18T14:39:04+00:00 November 7th, 2017|Opportunities for families, Research|Comments Off

Study: Girl Behavior and NeuroDevelopment (Girl BAND)

Researchers at Stanford University are studying brain development in relation [...]

By NFXF| 2018-09-12T15:40:29+00:00 October 4th, 2017|Opportunities for families, Research|Comments Off