Category: Opportunities for families

Assessment of Glutamatergic System in Fragile X syndrome

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Massachusetts General Hospital. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to

CANDI & UMASS: Pilot Study for Children with Fragile X Syndrome

The Child and Adolescent NeuroDevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a pilot research study on Fragile X syndrome, sponsored by Fulcrum Therapeutics. The goal of this study is to test new ways of measuring results in Fragile X clinical trials. Eligible participants will have 3 study visits — 2



Study: Brain Development in Relation to Girls with Fragile X Syndrome

Brains, Behavior, and Girls! Researchers at Stanford University are studying brain development in relation to behavior, cognition, and mood in girls with fragile X syndrome. This study is an NIH-funded research project aimed to increase our understanding of the brain during a critical time of a child’s growth. Information learned from this research can ultimately



Studies of Brain/Body Interaction at Rutgers University

What is the study for? The goal of this study is to provide a comprehensive profile of the nervous systems in order to understand interactions between the brain and body, while an individual walks naturally and while breathing at a slow controlled pace. We aim to study these interactions among a variety of populations, from



Study: Come Interact and Play Music with our Avatar!

(Above) Example of participant interacting in real-time with our avatar. What is the study for? This study investigates the interactions between an avatar and a person in our custom body suit. We investigate, in a playful setting, how to improve the person’s body awareness to improve motor control.Who can participate? Participation is open to all,

Study: Cognition, Balance, and Walking Patterns in Fragile X Premutation Carriers

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Rush University Medical Center. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as

Survey: Communication with Children Unaffected by Fragile X

by NFXF

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of University of Maryland. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to

Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is the Protocol Principal Investigator and is leading this national study.  The National Institute of Neurological Disorders and Stroke (NINDS), a



Vanderbilt: Fragile X/Angelman Syndrome Study

by David Salomon

girl blowing dandelion
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Vanderbilt University Medical Center. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as

Ovid Therapeutics: Single Dose Pharmacokinetics (PK) Study

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Ovid Therapeutics. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the

Research: UCD Language Intervention in Treatment for FXS

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of UC Davis MIND Institute. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as

Research: Memory Study in Children/Youth

Researchers at the University of Alberta’s Department of Pediatrics and Stollery Hospital are completing a study, looking at memory in children with a neurodevelopmental disorder or typical development. Who Can Participate? Anyone aged four years and up. What Will You Do? Go to our website with your touchscreen device and click after the welcome screen.