Dr. Schmitt and the Cincinnati Fragile X Center are conducting a survey to learn about potential barriers and advantages of conducting research visits in the home.
About the Study
Who can participate?
Caregivers of individuals with Fragile X syndrome (of any age!) may be eligible to participate.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will complete survey online. The survey should take about 15-20 minutes and can be completed in more than one sitting.
What are the good things that can happen from this research?
Participants are expected to indirectly benefit from this study due to the general reward of being able to help with research, including potential to enhance best practices that may directly affect their participation in research in the future.
What are the bad things that can happen from this research?
There are no anticipated risks to the participant; however, there may be other risks that we do not know about yet.
Will I or my child be paid to complete this study?
Survey participants will not be paid.
Interested in Participating?
Our Most Recent Opportunities
Study: Recording the Experiences of Black and Hispanic Mothers who have Children with Fragile X Syndrome
Are you a Black or Hispanic woman raising a child with Fragile X syndrome? Researchers want to hear about your experiences. The South Carolina Family Experiences Lab is conducting 30-minute interviews to learn about the experiences of Black and Hispanic women raising a child with Fragile X syndrome. About the Study Who can participate? Black and Hispanic women of any age, who have a child with Fragile X syndrome, may [...]
Survey: What do you think about at-home research visits?
Dr. Schmitt and the Cincinnati Fragile X Center are conducting a survey to learn about potential barriers and advantages of conducting research visits in the home.
Study: Single Dose Study for Adult Women and Men with FXS
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The Kelleher Lab at Purdue University is conducting an NIH-funded clinical trial called Project WellCAST. Project WellCAST aims to understand how to best support caregivers of children with rare neurogenetic conditions, including Fragile X syndrome.
Study: Language, executive function, and quality of life of those with the Fragile X premutation
Researchers at the Waisman Center at UW-Madison are recruiting adults with the Fragile X premutation for a study on language, executive function, and quality of life.
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The Research in Developmental Disabilities and Language Lab at The University of Wisconsin-Madison is conducting a survey to learn about you and your child’s experiences in speech therapy during early childhood.