Opportunities for families

/Opportunities for families

Clinical Trial CONNECT-FX: ZYN002 Gel

This study will evaluate the efficacy and safety of ZYN002, a clear cannabidiol (CBD) gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).

By | 2019-08-19T14:11:43+00:00 Dec 7, 2018|Opportunities for families|Comments Off on Clinical Trial CONNECT-FX: ZYN002 Gel

Survey: Women with Fragile X Syndrome

Fragile X syndrome is the most common cause of inherited intellectual disability. The clinical variability of this syndrome is wide, particularly in females who initially were thought to be unaffected or carriers. Females have random [...]

By | 2019-07-08T17:31:30+00:00 Oct 26, 2018|Opportunities for families|Comments Off on Survey: Women with Fragile X Syndrome

MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy

The aim of the study is to examine problems with a chemical messenger called glutamate in the brain in Fragile X syndrome, and how it impacts sensory, motor and cognitive abilities and implicated structural and functional connectivity.

By | 2019-07-16T15:18:29+00:00 Apr 5, 2018|Opportunities for families, Research|Comments Off on MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy

Study: Residential and Respite Care Services Survey

A study by Vanderbilt Kennedy Center A study for family members with intellectual members of adults with intellectual & developmental disabilities. Anonymously share your experience with residential care services and respite care services. 10 randomly [...]

By | 2018-05-08T22:45:03+00:00 Feb 28, 2018|Opportunities for families|Comments Off on Study: Residential and Respite Care Services Survey
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