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Seaside Therapeutics Seaside Therapeutics is working to deliver drug treatments that address the underlying causes of developmental disorders like Fragile X syndrome. Right now, Seaside is testing an investigational medicine for people [...]
Laurie Yankowitz, EdD, and Vicki Sudhalter, PhD Has app technology made a qualitative difference for your affected family member? Please help us share valuable information about use of app technology by individuals with Fragile [...]
University of Cambridge (UK) Researchers from the University of Cambridge (UK) are carrying out an online survey about situations that might increase or decrease the chances of children/adults with epilepsy and intellectual disability having [...]
Your answers will help give a better understanding of how Fragile X syndrome affects families and children What job opportunities are available to young adults with Fragile X syndrome? When do parents tell a daughter [...]
Kennedy Krieger Institute Kennedy Krieger Institute is looking for children, ages 5 through 11 years, with Fragile X syndrome to participate in a research study. The purpose of this study is to determine if [...]
Stanford New Stanford Treatment Study Focused on Fragile X Syndrome Adolescents and Young Adults with Fragile X Syndrome Age 12-29 Years Needed We are recruiting females and males between the ages of 12 and [...]
Stanford University Standford University Research Individuals with Fragile X Syndrome Age 9-23 Years Needed We are conducting a behavioral treatment study utilizing a fun, reward-based learning paradigm to maximize your child’s learning potential. Participation [...]
RTI International RTI International{{1}}, an independent, nonprofit research organization, is conducting an important study. The purpose of this study is to better understand the views of people who provide care to a son or [...]
Young children with Fragile X syndrome and their biological mothers are being recruited to participate in a language intervention study conducted by the research team of Dr. Leonard Abbeduto at the MIND Institute, University of California-Davis. Children should be between 2- and 6-years of age and have little spoken language. The project will teach mothers to interact with their children in ways that support communication and language development.
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Nashville's Fragile X Treatment Research Program at Vanderbilt University. The announcement and the parties conducting and sponsoring [...]
The University of California, Davis MIND Institute is currently recruiting men with the Fragile X premutation between the ages of 18-50 to participate in a research study focusing on emotion and memory. Participation includes 2 [...]
