The University of South Carolina’s Neurodevelopmental Disorders Lab is currently recruiting families with infants 10 months and younger who have been diagnosed with the FMR1 premutation or full mutation Fragile X. We are interested in learning about the early development of infants who are at risk for developmental delay to promote early diagnosis and treatment for these children and their families.
Participation involves multiple assessments of your child’s developmental skills between 9 and 24 months, as well as interviews with you, the parent(s), regarding your own experiences and perceptions of your child’s development. If you agree to be in the study, we will email rating scales and forms to you which will take approximately 1 ½ hours to complete, and we will schedule a face-to-face assessment with you and your child for either one or two days. Most research assessments take place in the home at a time convenient to the family. Travel is not required as the research staff will travel to the family’s home for assessments. Families also receive compensation for their participation. For more information on the assessments, please visit www.uscdevlab.com/assessment.php?name=assessment#infant.
This research study is funded by the National Institute of Mental Health (1R01MH0901194-01A1). IRB Number: Pro00001966.
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