RTI International{{1}}, an independent, nonprofit research organization, is conducting an important study. The purpose of this study is to better understand the views of people who provide care to a son or male with Fragile X syndrome who is at least 5 years of age. The results of the study will be used to help make better decisions about developing medications to treat the most pressing needs of people with Fragile X syndrome.{{2}} RTI is working with the National Fragile X Foundation to invite their constituents.

RTI International is working with the National Fragile X Foundation to invite their constituents to participate in our survey. Your answers to our questions are very important to make sure we draw the right conclusions about the opinions of people like you. We need you to help make our study a success.

The survey will take less than 20 minutes to complete. We will donate $15 to the National Fragile X Foundation for each completed survey to support Fragile X research and other Foundation activities.

To take the survey, please click on the link below:

Treatment Preferences for Fragile X Syndrome

Your participation in this survey is entirely voluntary and all your responses will be kept confidential. No personally identifiable information will be associated with your responses in any reports of this data.

[[1]]RTI International is one of the world’s leading research institutes, dedicated to improving the human condition by turning knowledge into practice. Our staff of more than 2,800 provides research and technical expertise to governments and businesses in more than 40 countries in the areas of health and pharmaceuticals, education and training, surveys and statistics, advanced technology, international development, economic and social policy, energy and the environment, and laboratory and chemistry services.[[1]]

[[2]]The RTI International’s institutional review board (IRB) number for this study is 12895.[[2]]