The communications world is moving faster than ever now that you can access information right at your fingertips, whether by smartphone, tablet, or computer on your lap or your desk. That’s why the National Fragile [...]
The is a wonderful way to get involved in the Fragile X community on a local level, to meet new families, share experiences, work together to raise awareness, advocate, fund raise, build friendships [...]
Thanksgiving is right around the corner, and for most people that means spending time with family while enjoying great meals, good times, and a big helping of gratitude. Then comes Black Friday, the day [...]
Robert Miller Executive Director National Fragile X Foundation Here in the Fragile X world we spend a lot of time parsing mutations, CGG repeat numbers and trying to define Fragile X. From a [...]
Here’s a question I often hear from families at election time: Which candidate(s) would be best for Fragile X? First of all, the NFXF is a non-profit, so we are by law (as well as [...]
Source: , Summer 2003 Marcia Braden, PhD As I was pondering what to write about it occurred to me just how adept people with Fragile X syndrome are at telling us what they need [...]
Robert Miller Executive Director National Fragile X Foundation In the months to come, the NFXF will continue to roll out the latest information from the 13th International Fragile X Conference. This was not [...]
June 2012 We’re less than a month away from setting sail for Miami so we hope you’ve already registered! If not, late online registration is still open until July 11, 2012. Afterwards, you must register [...]
Robert Miller Executive Director National Fragile X Foundation Some of you may have recently read an online commentary by nationally syndicated, Foxnews.com columnist Dr. Manny Alvarez. Not only does “Dr. Manny,” as he [...]
As we look to celebrate National Fragile X Awareness Day on July 22, we are moved by the people whose stories of hope you will glimpse below. They inspire us at the National Fragile X [...]
Jeffrey Cohen Director of Government Affairs & Advocacy During the week of June 25th I was scheduled to be in DC to attend Congressional Hearings on Seclusion and Restraint and to meet with [...]
If you're not coming to Miami, the next best thing will be to check in regularly with us, starting with www.fragilex.org, where we'll have regular updates on National Fragile X Awareness Day and conference activities, [...]
Janet Fisher and her husband started their LINKS group shortly after attending the International Fragile X Conference in Detroit. They truly enjoyed meeting so many people at the conference that had Fragile X children and [...]
This year’s conference is ship-shape with some great keynote presenters lined up to start your full-sail days! Keynote Speakers Be buoyed up by on the latest research news presented by Elizabeth Berry-Kravis MD PhD, Kim [...]
Jeffrey Cohen Director of Government Affairs & Advocacy To the casual observer it may look like absolutely nothing is going on in Washington, DC but if your observation stopped there you’d be missing a [...]
