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Advocacy Update – Emails, a Win, and a Day

By Dan Whiting|2017-12-27T17:36:28-05:00Dec 27, 2017|Action Alert, Advocacy, Advocacy Day|

Health Insurance, Medicaid, and SSI/SSDI These are three issues that aren’t going away. They are especially critical for Fragile X families and other families with disabilities, lifelong care needs, etc. To help your members [...]

Merchandise Being Sold with Offensive “R-Word” Language

By NFXF|2016-12-13T11:16:44-05:00Dec 13, 2016|Action Alert, Advocacy|

We are incredibly proud of the swift action taken by members of our community, after discovering offensive items for sale on a few major retailers' websites. We stand with you.

Invite Your Members of Congress to a Fragile X Roundtable Discussion

By NFXF|2013-05-09T12:22:07-04:00May 9, 2013|2013, Action Alert, Call for Action|

On May 17th, Representatives Gregg Harper and Eliot Engel will be hosting a Roundtable discussion on Fragile X and autism for members of Congress and their staff. Please send an email today to invite your Members of Congress to this important event.

The continued push for the ABLE Act and more

By NFXF|2012-05-31T14:49:11-04:00May 31, 2012|Action Alert, Advocacy, Fragile Xtras|

Jeffrey Cohen Director of Government Affairs & Advocacy To the casual observer it may look like absolutely nothing is going on in Washington, DC but if your observation stopped there you’d be missing a [...]

National Call-In Day in Support of the ABLE Act , Wednesday April 25, 2012

By NFXF|2012-04-25T10:26:13-04:00Apr 25, 2012|Action Alert, Advocacy|

The National Fragile X Foundation is co-hosting National Achieving a Better Life Experience (ABLE) Act Call-In Day on Wednesday, April 25, along with Autism Speaks, National Down Syndrome Society, Muscular Dystrophy Association, NDSC, and several [...]

Help Us Keep Fragile X in the Federal Budget! (Deadline March 20th)

By NFXF|2012-03-15T11:48:59-04:00Mar 15, 2012|2012, Action Alert|

It's been one week since Fragile X Advocacy Day 2012, and we need your help—right now! (Even if you didn’t participate in Advocacy Day.) The more people who help, the better it will be for [...]

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The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more.

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