Health Insurance, Medicaid, and SSI/SSDI These are three issues that aren’t going away. They are especially critical for Fragile X families and other families with disabilities, lifelong care needs, etc. To help your members [...]
We are incredibly proud of the swift action taken by members of our community, after discovering offensive items for sale on a few major retailers' websites. We stand with you.
On May 17th, Representatives Gregg Harper and Eliot Engel will be hosting a Roundtable discussion on Fragile X and autism for members of Congress and their staff. Please send an email today to invite your Members of Congress to this important event.
There were over 90 new members of Congress sworn into office last Thursday — a diverse group of men and women, straights and gays, married and single, well-known and unknown. The freshman class of 2013 [...]
Jeffrey Cohen Director of Government Affairs & Advocacy To the casual observer it may look like absolutely nothing is going on in Washington, DC but if your observation stopped there you’d be missing a [...]
The National Fragile X Foundation is co-hosting National Achieving a Better Life Experience (ABLE) Act Call-In Day on Wednesday, April 25, along with Autism Speaks, National Down Syndrome Society, Muscular Dystrophy Association, NDSC, and several [...]
On Thursday we asked you to Help Us Keep Fragile X in the Federal Budget! Since our request we have received over 2,700 letters have been sent in favor of continuing funding for Fragile X [...]
It's been one week since Fragile X Advocacy Day 2012, and we need your help—right now! (Even if you didn’t participate in Advocacy Day.) The more people who help, the better it will be for [...]
To my friends in the Fragile X community: As you will read in the current issue of the Foundation Quarterly the state of affairs in our nation’s capitol is……unsettled. Drastic cuts loom and unless we [...]
The Achieving a Better Life Experience Act (ABLE) of 2011 will be reintroduced in the U.S. Senate and House on November 15 by Represenatives Crenshaw and McMorris-Rogers and Senator Casey. The Act will give individuals [...]