Call for Action

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How have we helped you?

How has the NFXF helped you and your family over the years? As we close out our 30th year of service to families, we'd like to share pictures and statements of how we've helped you [...]

By | 2014-10-14T11:43:39+00:00 Oct 14, 2014|Call for Action|Comments Off on How have we helped you?

Quick Survey: Treatments for Problem Behaviors in FXS

Please help the NFXF and the Fragile X clinics gather the information necessary to support clinical trials in Fragile X syndrome (FXS) across the country. These studies are designed to find out if medicines commonly [...]

By | 2014-02-20T12:06:59+00:00 Feb 20, 2014|Call for Action|Comments Off on Quick Survey: Treatments for Problem Behaviors in FXS

Xpressing Gratitude! We Need Your Videos!

The NFXF is always hard at work doing everything we can to help the Fragile X community. You know that and we do, too! But do you know who's really making this all happen? That’s [...]

By | 2013-10-23T07:48:09+00:00 Oct 23, 2013|Call for Action|Comments Off on Xpressing Gratitude! We Need Your Videos!

Let the Senate Know We Need Fragile X Funding!

The "letter to appropriators" urging support for Fragile X funding has now been presented in the Senate by our FX champions, Senators Stabenow and Isakson. So far, none of their colleagues have signed on, but [...]

By | 2013-04-17T09:10:16+00:00 Apr 17, 2013|2013, Call for Action|Comments Off on Let the Senate Know We Need Fragile X Funding!

Let Congress Know We Want Fragile X Research!

It’s Advocacy Time Again—Fragile X Needs Your Help Today! As you all know, nearly 200 Fragile X advocates gathered in Washington, DC on March 6 to brave the snow storm that wasn’t and then hand-carry [...]

By | 2013-04-09T06:27:23+00:00 Apr 9, 2013|2013, Call for Action|Comments Off on Let Congress Know We Want Fragile X Research!

Thankful for… Image Request

Thanksgiving is around the corner and we'd like to know what you are thankful for? Share your favorite family photo along with what your family is thankful for and we will be compiling these into [...]

By | 2012-10-26T13:12:36+00:00 Oct 26, 2012|Call for Action|Comments Off on Thankful for… Image Request

Pictures of Fragile X Fathers

Father's day is right around the corner and we're working on a tribute to some of the amazing Fragile X Dads out there. We would like you to share some pictures of your dad or [...]

By | 2012-05-23T13:57:56+00:00 May 23, 2012|Call for Action|Comments Off on Pictures of Fragile X Fathers

A Mother's Touch image request

Mother’s Day is fast approaching and this year we’re focusing on a Mother’s Touch. We'd like people to share an image they may have of someone affected by a Fragile X-associated disorder and their mom. [...]

By | 2012-04-24T10:49:47+00:00 Apr 24, 2012|Call for Action|Comments Off on A Mother's Touch image request

How Do You Say I Love You?

We have a special little project just around the corner and need your help! We all show and say I love you in many different ways - We want to see how you and your [...]

By | 2012-01-23T12:02:59+00:00 Jan 23, 2012|Call for Action|Comments Off on How Do You Say I Love You?

What are you thankful for?

We are working on a project and we would like to know what you are thankful for. Please complete the form below by Wednesday, November 9, 2011.

By | 2011-11-03T13:29:36+00:00 Nov 3, 2011|Call for Action|Comments Off on What are you thankful for?

Share about a transition point in your life

The National Fragile X Foundation is looking people to share a first-person story from parents/family members point of view facing specific transition points. Submissions will be considered for inclusion into the Fragile X Quarterly and other future foundation communications.

By | 2011-10-04T08:36:31+00:00 Oct 4, 2011|Call for Action|Comments Off on Share about a transition point in your life

Dad's Turn! Help us with a Father's Day video

For Mother's Day, a couple fragile x parents collaborated together at the last minute and created an amazing tribute to the mothers' of Fragile X-associated disorders in a few short days. If you missed the [...]

By | 2011-05-27T07:31:00+00:00 May 27, 2011|Call for Action|Comments Off on Dad's Turn! Help us with a Father's Day video