[mpc_textblock content_width="100" font_size="16" font_line_height="1.7" margin_divider="true" mpc_tooltip__border_divider="true" mpc_tooltip__padding_divider="true"] At first, that might sound like a strange question. But, love is someone or something that touches you in your deepest place and warms your heart. Fragile [...]
The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]
The Fragile X Resource Group of Greater New York City gathered on a cold January day to dance their cares away and enjoy time with their Fragile X family.
Inaugural Business Meeting Date: March 16, 2014 Time: 02:00 AM - Location: Cambridge, MA Hosts: Cost:
We are proud to announce that Charity Navigator has awarded us the prestigious rating of 4 Stars. That's the highest possible rating from America's Largest Charity Evaluator. The goal of the Charity Navigator is to [...]
Here’s a question I often hear from families at election time: Which candidate(s) would be best for Fragile X? First of all, the NFXF is a non-profit, so we are by law (as well as [...]
Date: Saturday, November 10, 2012 Time: 1:00 PM - 4:00 PM Location: Great Country Farms 18780 Foggy Bottom Road Bluemont, VA 20135 Hosted by: Cost: Special price of $8 Details This is a [...]
Liane Abrams, MS, CGC Each day I receive calls and emails from parents, relatives and individuals affected by Fragile X-associated Disorders. Many of the emails and calls include questions about FXTAS (Fragile X-associated tremor ataxia [...]
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
Here's your chance to step-up and take action. Representative Gregg Harper has already introduced the TEAM Act package of bills for his son and for all of our family members and friends impacted by FX. [...]
The Individuals with Disabilities Education Act (IDEA) will be reauthorized within the next year or two. To prepare for the reauthorization of IDEA, several disability organizations are sponsoring a survey that seeks to answer this [...]
