FY18 CDC Funding

By |2017-07-10T16:20:27-04:00Jul 10, 2017|Uncategorized|

The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]

Across my Desk: Females and FXTAS

By |2012-03-29T20:45:00-04:00Mar 29, 2012|Uncategorized|

Liane Abrams, MS, CGC Each day I receive calls and emails from parents, relatives and individuals affected by Fragile X-associated Disorders. Many of the emails and calls include questions about FXTAS (Fragile X-associated tremor ataxia [...]

Focus on Fundraisers: August

By |2011-08-30T15:54:00-04:00Aug 30, 2011|Fundraising, Uncategorized|

Fragile X Charity Golf ClassicOn August 12, Missy Zolecki and the SW Chicago LINKS group held its first Fragile X Charity Golf Classic in Romeoville, IL.  In addition to the tournament, the event offered some [...]

Focus on Fundraisers: July

By |2011-07-29T13:05:00-04:00Jul 29, 2011|Guest Submission, Uncategorized|

Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness.  Guests [...]