Katie Couric to feature Fragile X on Yahoo News!

By |2015-01-13T12:01:33-05:00Jan 13, 2015|In the News|

Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...

CDC Feature: Public Health Research on FXS

By |2014-10-20T14:57:37-04:00Oct 20, 2014|In the News|

In their article, “Public Health Research on Fragile X Syndrome”, the CDC explains their Fragile X syndrome (FXS) data collection progress, and results from a recent stakeholder meeting where they identified public health gaps. The [...]

Magic Arrows

By |2014-09-18T08:14:29-04:00Sep 18, 2014|In the News|

The inspirational story behind an innovative game concept that may help children with Fragile X manage transitions Ben Moelis’ connections to Justin Silver runs deep. Their sisters took swimming classes together, their families go apple [...]

Huber: A Response to "Marijuana-like Brain Chemicals" Possible Treatment for FXS

By |2014-05-20T12:50:30-04:00May 20, 2014|In the News|

The Fox news piece highlighted an original research article, by Drs. Daniele Piomelli and Olivier Manzoni and colleagues, that found boosting the production of a natural marijuana-like chemical in the brain, 2-AG, called an endocannabinoid, could restore normal brain function and behavior in the mouse model of Fragile X. Although this finding is very exciting, don’t make the marijuana brownies just yet!

More Than a Case of Fragile X

By |2014-05-08T11:58:58-04:00May 8, 2014|In the News|

Colleen McGavin, a student at the University of Michigan Medical School, explains to the medical community that her brother with Fragile X is not just "a case of Fragile X" but a "beautiful, complex, vulnerable, [...]

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