In the News

/In the News

Neuren’s Trofinetide Successful in Phase 2 Clinical Trial in Fragile X Syndrome

I was honored to have been invited to represent the Fragile X community and the NFXF at the recent meeting sponsored by Neuren Pharmaceuticals, in which they shared some very encouraging news regarding their Phase [...]

By | 2015-12-07T17:33:48+00:00 Dec 7, 2015|FXS, In the News, News Reports and Commentaries|Comments Off on Neuren’s Trofinetide Successful in Phase 2 Clinical Trial in Fragile X Syndrome

CDC Awards $1.75 Million Grant to Expand Nationwide Registry for Fragile X Syndrome

A $1.75 million grant to continue research on Fragile X syndrome was given to the Institute for Basic Research (IBR), Willowbrook, by the Centers for Disease Control. Fragile X syndrome is the most common known cause [...]

By | 2015-09-14T13:37:20+00:00 Sep 14, 2015|Advocacy Day, FXCRC and Clinics, In the News, Keeping You Informed|Comments Off on CDC Awards $1.75 Million Grant to Expand Nationwide Registry for Fragile X Syndrome

Katie Couric to feature Fragile X on Yahoo News!

Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...

By | 2015-01-13T12:01:33+00:00 Jan 13, 2015|In the News|Comments Off on Katie Couric to feature Fragile X on Yahoo News!

CDC Feature: Public Health Research on FXS

In their article, “Public Health Research on Fragile X Syndrome”, the CDC explains their Fragile X syndrome (FXS) data collection progress, and results from a recent stakeholder meeting where they identified public health gaps. The [...]

By | 2014-10-20T14:57:37+00:00 Oct 20, 2014|In the News|Comments Off on CDC Feature: Public Health Research on FXS

NIH awards $35 Million for Fragile X Research

Three research teams receive funding over next five years The National Institutes of Health (NIH) is making funding awards of $35 million over the next five years to support the Centers for Collaborative Research in [...]

By | 2014-09-23T16:26:26+00:00 Sep 23, 2014|2014, Advocacy, In the News|Comments Off on NIH awards $35 Million for Fragile X Research

Magic Arrows

The inspirational story behind an innovative game concept that may help children with Fragile X manage transitions Ben Moelis’ connections to Justin Silver runs deep. Their sisters took swimming classes together, their families go apple [...]

By | 2014-09-18T08:14:29+00:00 Sep 18, 2014|In the News|Comments Off on Magic Arrows

Huber: A Response to "Marijuana-like Brain Chemicals" Possible Treatment for FXS

The Fox news piece highlighted an original research article, by Drs. Daniele Piomelli and Olivier Manzoni and colleagues, that found boosting the production of a natural marijuana-like chemical in the brain, 2-AG, called an endocannabinoid, could restore normal brain function and behavior in the mouse model of Fragile X. Although this finding is very exciting, don’t make the marijuana brownies just yet!

By | 2014-05-20T12:50:30+00:00 May 20, 2014|In the News|Comments Off on Huber: A Response to "Marijuana-like Brain Chemicals" Possible Treatment for FXS

More Than a Case of Fragile X

Colleen McGavin, a student at the University of Michigan Medical School, explains to the medical community that her brother with Fragile X is not just "a case of Fragile X" but a "beautiful, complex, vulnerable, [...]

By | 2014-05-08T11:58:58+00:00 May 8, 2014|In the News|Comments Off on More Than a Case of Fragile X

Published: Newborn, Carrier, and Early Childhood Screening Recommendations for Fragile X

The NFXF is pleased to see the recent publication of “Newborn, Carrier, and Early Childhood Screening Recommendations for Fragile X" in the prestigious “Pediatrics: Official Journal of the American Academy of Pediatrics.” At the urging [...]

By | 2017-08-18T14:56:31+00:00 Dec 3, 2012|In the News, Treatment and Intervention|Comments Off on Published: Newborn, Carrier, and Early Childhood Screening Recommendations for Fragile X

Changing Minds: Advocates Reshape How We Think About Autism

Brandon Reynolds, the author of the article Changing Minds: Advocates Reshape How We Think About Autism which recently appeared in the SF Weekly, has a brother with Fragile X syndrome and has been a past contributor to the NFXF’s Foundation Quarterly. The article features quotes from our executive director, Robert Miller, FX expert and medical director at UC Davis’ MIND Institute, Randi Hagerman, and several FX parents.

By | 2012-11-05T08:42:00+00:00 Nov 5, 2012|In the News|Comments Off on Changing Minds: Advocates Reshape How We Think About Autism
Load More Posts