When we heard that Katie Couric and her news team wanted to feature Fragile X on Yahoo News with Katie Couric, we couldn’t contain our excitement! Now it’s here and we’re so grateful to Katie, her team and Yahoo for spotlighting Fragile X.
The news piece features interviews with NFXF co-founder Dr. Randi Hagerman and NFXF board member Brian Silver and his wife Shari, who co-leads the Fragile X Resource Group of Greater New York City.
The Fragile X Autism Connection
“He crawls into your heart. And he has a way of just touching you. Because he is so sensitive, and he has a good sense of humor. And those are on good days.” It’s the good days for her 13-year-old son, Justin, that Shari Silver is hoping for.
Justin suffers from Fragile X Syndrome, a neurodevelopmental condition that causes symptoms ranging from learning disabilities to severe intellectual disabilities, seizures, speech delay and anxiety. It is the most common known cause of inherited cognitive impairment and the leading known genetic cause of autism.
Read the full article on Yahoo! News
Also watch our teaser video to find out how we made it happen!