The first time I remember talking to Oscar about his younger brother Saul’s special needs, he couldn’t have been more than 5 years old. Definitely still in preschool. There was something–though I can’t remember exactly what–that Oscar thought Saul would like and he said, “Saul is going to do this!” and started flapping his hands and bouncing up and down. I lost it. I couldn’t believe my sweet little boy was making fun of his younger brother who has Fragile X, which is a genetic syndrome and the cause of intellectual disabilities that can include learning problems, autism, anxiety, sensory, and behavioral issues.
As a parent, my biggest fear was that Saul was going to be subject to a lifetime of cruelty from others who didn’t understand his condition, but I didn’t think this cruelty would begin in our own home. I yelled at Oscar–I can’t recall exactly I said–and his face fell. He said, “But Saul will be happy and that’s what he does when he’s happy.” I realized then that he wasn’t mocking his little brother. He was simply acting out the happiness he anticipated from Saul. And I had yelled at him for it. When I agonize over all of the mistakes I’ve made as a mother to three children, this incident always cracks my top 10.