Fragile X Awareness Day

On July 12, 2000, the 106th Congress designated July 22 as National Fragile X Awareness Day.

Rep. Engel Raises Fragile X Awareness in Congress

By |2019-07-22T15:07:30-04:00Jul 22, 2019|Advocacy, Awareness Day|

Rep. Eliot Engel, D-NY-16, serves as the co-chair of the Fragile X Caucus in the U.S. House of Representatives. His co-chair is Rep. Chris Smith, R-NJ-4. To help raise awareness of Fragile X for National Fragile X Awareness Day, Rep. Engel had a statement. Read the full statement here.

Pack Your Lunch for Fragile X

By |2019-07-18T18:03:25-04:00Jul 17, 2019|Awareness Day|

July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!

Behold: The Fragile X Syndrome Burger

By |2019-07-18T14:22:32-04:00Jul 12, 2019|Awareness Day|

Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.

Happy Father’s Day to All Fragile X Dads

By |2019-06-17T08:56:44-04:00Jun 17, 2019|Awareness Day|

For this Father's Day, some very special kids are telling their dad's they love them and why in their own, unique ways. But the message is for all Fragile X dads who go the x-tra mile on this journey. To all of you - thank you!

The Many Ways You Raise Fragile X Awareness—Every Day!

By |2017-07-11T11:40:58-04:00Jul 11, 2017|Awareness Day|

[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]

We Crossed the Let ‘Em Know Finish Line!

By |2015-09-15T10:58:41-04:00Sep 15, 2015|Awareness Day|

Awareness Month was a Marathon Success! National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed about Fragile X, ensuring that one more doctor, one [...]

The 2015 NFXF Let ‘Em Know 5K!

By |2015-04-15T13:18:27-04:00Apr 15, 2015|Awareness Day|

Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for [...]

You Made Awareness Month Happen!

By |2014-09-03T08:46:30-04:00Sep 3, 2014|Awareness Day|

Our top Let 'Em Know team, New Jersey Fragile X Community Support Group National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed [...]

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