Awareness Day

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Rep. Engel Raises Fragile X Awareness in Congress

Rep. Eliot Engel, D-NY-16, serves as the co-chair of the Fragile X Caucus in the U.S. House of Representatives. His co-chair is Rep. Chris Smith, R-NJ-4. To help raise awareness of Fragile X for National Fragile X Awareness Day, Rep. Engel had a statement. Read the full statement here.

By | 2019-07-22T15:07:30+00:00 Jul 22, 2019|Advocacy, Awareness Day|Comments Off on Rep. Engel Raises Fragile X Awareness in Congress

Pack Your Lunch for Fragile X

July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!

By | 2019-07-18T18:03:25+00:00 Jul 17, 2019|Awareness Day|Comments Off on Pack Your Lunch for Fragile X

Behold: The Fragile X Syndrome Burger

Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.

By | 2019-07-18T14:22:32+00:00 Jul 12, 2019|Awareness Day|Comments Off on Behold: The Fragile X Syndrome Burger

Happy Father’s Day to All Fragile X Dads

For this Father's Day, some very special kids are telling their dad's they love them and why in their own, unique ways. But the message is for all Fragile X dads who go the x-tra mile on this journey. To all of you - thank you!

By | 2019-06-17T08:56:44+00:00 Jun 17, 2019|Awareness Day|Comments Off on Happy Father’s Day to All Fragile X Dads

We Crossed the Let ‘Em Know Finish Line!

Awareness Month was a Marathon Success! National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed about Fragile X, ensuring that one more doctor, one [...]

By | 2015-09-15T10:58:41+00:00 Sep 15, 2015|Awareness Day|Comments Off on We Crossed the Let ‘Em Know Finish Line!

The 2015 NFXF Let ‘Em Know 5K!

Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for [...]

By | 2015-04-15T13:18:27+00:00 Apr 15, 2015|Awareness Day|Comments Off on The 2015 NFXF Let ‘Em Know 5K!
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