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Fragile X Awareness Day

On July 12, 2000, the 106th Congress designated July 22 as National Fragile X Awareness Day.

Rep. Engel Raises Fragile X Awareness in Congress

By |2019-07-22T15:07:30-04:00Jul 22, 2019|Advocacy, Awareness Day|

Rep. Eliot Engel, D-NY-16, serves as the co-chair of the Fragile X Caucus in the U.S. House of Representatives. His co-chair is Rep. Chris Smith, R-NJ-4. To help raise awareness of Fragile X for National Fragile X Awareness Day, Rep. Engel had a statement. Read the full statement here.

Pack Your Lunch for Fragile X

By |2019-07-18T18:03:25-04:00Jul 17, 2019|Awareness Day|

July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!

Behold: The Fragile X Syndrome Burger

By |2019-07-18T14:22:32-04:00Jul 12, 2019|Awareness Day|

Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.

Happy Father’s Day to All Fragile X Dads

By |2019-06-17T08:56:44-04:00Jun 17, 2019|Awareness Day|

For this Father's Day, some very special kids are telling their dad's they love them and why in their own, unique ways. But the message is for all Fragile X dads who go the x-tra mile on this journey. To all of you - thank you!

We Crossed the Let ‘Em Know Finish Line!

By |2015-09-15T10:58:41-04:00Sep 15, 2015|Awareness Day|

Awareness Month was a Marathon Success! National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed about Fragile X, ensuring that one more doctor, one ...

The 2015 NFXF Let ‘Em Know 5K!

By |2015-04-15T13:18:27-04:00Apr 15, 2015|Awareness Day|

Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for ...

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