Researchers will measure the rate at which the brain makes proteins (protein synthesis) and will identify specific parts of the brain affected in FXS.
EveryLife Foundation is holding the Rare Artist Art Contest and we encourage you to enter! All members of the rare disease community throughout the world – including patients, caregivers, family, researchers and medical professionals – are [...]
Thank you to our runners and volunteers who helped us make our vision a reality this past Saturday at Bradley Lake Park. X Strides pride is what we witnessed as our seventy-five [...]
North San Diego Family Picnic Date: July 29, 2017 Time: 11:00 AM Location: Sunset Park909 Puesta Del Sol San Marcos, CA 920278 We will meet by the basketball courts. Hosts: North San Diego [...]
Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. It happens in a variety of ways, and [...]
X-Strides Northern California 5K Date: July 15, 2017 Time: 9:00 AM - 2:00 PM Location: Lake Merritt 568 Bellevue Ave Oakland, CA 94610 Hosts: Fragile X Northern California Cost: Adult (ages 16 and over): $25.00 [...]
June 2-3, 2017 – Members of the Fragile X Resource Center of Missouri gathered at the Celebrating Life Cake Boutique on Friday, June 2, to welcome NFXF CEO Tony Ferlenda to town. [...]
Thank you to Jen Newsome of the NFXF’s Fragile X Association of Southern California. After an active role in the group, she took on a leadership role and has lead the group to provide many [...]
Another great conference in the Northwest Region this year hosted by Fragile X Association of WA State! It was an honor and privilege to introduce Drs. Paul and Randi Hagerman, both distinguished [...]
May 11, 2017 - Moms of children with Fragile X met at the Artisanal Burger Company to spend time with friends while enjoying delicious handcrafted burgers made with fresh, local ingredients. The moms, Madelene, Orna, [...]
Save the date for Southeast Pennsylvania's educational conference!
Get excited for the Fragile X of Minnesota's 2nd Annual Fundraiser at Beaver Island Brewing Company! Good beer, good times and a good cause!
Fragile, Not Broken Walk for Knowledge Date: June 6, 2015 Time: 09:00 AM - 12:00 PM Location: Tillis Park9551 Litzsinger Road Ladue, MO 63124 Gloria Rogers Pavillion Hosts: Fragile X Resource Center of Missouri Cost: [...]
Greater Atlanta FX Family Fun Day Date: May 31, 2015 Time: 03:00 PM - 05:00 PM Location: Suwanee City Hall Park - Big Splash Pad373 Buford Highway Suwanee, GA 30024 Hosts: Greater Atlanta Fragile X [...]
Maple Ridge Golf Tournament for Fragile X Date: March 28, 2015 Time: 01:30 PM Location: Maple Ridge Golf Club4700 Maple Ridge Trail Columbus, GA 31909 Hosts: Greater Atlanta Fragile X Maple Ridge Golf Club Cost: [...]