A Computer-based Intervention for Memory and Attention in Fragile X Syndrome

By |2019-05-14T15:13:49-04:00May 14, 2019|Keeping You Informed, Research, Treatment and Intervention|

A research team from the UC Davis MIND Institute recently published findings from a study using a computer program called Cogmed to train memory, flexible thinking, and attention in children and adolescents with Fragile X Syndrome. Referred to as ‘executive function’ - memory, flexible thinking, controlling impulses, and attention are problems characteristic of individuals with Fragile X Syndrome. The computer program was employed with 100 children and adolescents with Fragile X Syndrome – presenting them with challenging visual and auditory tasks involving memory and attention and challenging them to think flexibly in order to complete those tasks.

Were New Fragile X Genes Discovered?

By |2019-04-24T14:44:13-04:00Apr 24, 2019|Keeping You Informed, Research|

A conversation with David L. Nelson, Ph.D., a Professor at Baylor College of Medicine and a member of the NFXF Scientific Advisory Council. He is a co-discoverer of the FMR1 gene and the repeat expansion mutation that causes fragile X syndrome. He is answering questions about a recent study published in the journal Molecular Psychiatry and an accompanying press release about the paper from Northwestern University’s Feinberg School of Medicine. The headline of the press release claims, "New Fragile X Genes Discovered."

How You Can Stand Up to Fragile X

By |2020-12-31T12:34:59-05:00Dec 10, 2018|Staff Updates|

When people ask me, What do you do? I tell them I help people living with a rare genetic disorder live their best lives — every day. After a pause, their response is often something along the lines of, Wow… that sounds really meaningful! I nod my head [...]

Nebraska Launches the ENABLE National Program

By |2016-07-08T08:21:20-04:00Jul 8, 2016|Keeping You Informed|

The National Fragile X Foundation is pleased to announce that the state of Nebraska has now launched its version of an Achieving A Better Life Experience (ABLE) account. Known as the “ENABLE” national program, it offers enrollment to qualified individuals with disabilities both in Nebraska and throughout the country.

Tennessee Launches ABLE TN Program

By |2016-06-20T12:44:04-04:00Jun 20, 2016|Keeping You Informed|

The National Fragile X Foundation is excited to announce the State of Tennessee’s launch of the country’s second Achieving a Better Life Experience (ABLE) program. ABLE TN is a national program, offering enrollment to qualified individuals with disabilities both in Tennessee and throughout the country.

Forward, Together

By |2014-09-15T10:03:45-04:00Sep 15, 2014|Keeping You Informed|

It is my honor and privilege to join the Fragile X community as the new CEO of the National Fragile X Foundation. Since my arrival, I have had the opportunity to witness, first-hand, what I [...]

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