Keeping You Informed

/Keeping You Informed

A Computer-based Intervention for Memory and Attention in Fragile X Syndrome

A research team from the UC Davis MIND Institute recently published findings from a study using a computer program called Cogmed to train memory, flexible thinking, and attention in children and adolescents with Fragile X Syndrome. Referred to as ‘executive function’ - memory, flexible thinking, controlling impulses, and attention are problems characteristic of individuals with Fragile X Syndrome. The computer program was employed with 100 children and adolescents with Fragile X Syndrome – presenting them with challenging visual and auditory tasks involving memory and attention and challenging them to think flexibly in order to complete those tasks.

By | 2019-05-14T15:13:49+00:00 May 14, 2019|Keeping You Informed, Research, Treatment and Intervention|Comments Off on A Computer-based Intervention for Memory and Attention in Fragile X Syndrome

Were New Fragile X Genes Discovered?

A conversation with David L. Nelson, Ph.D., a Professor at Baylor College of Medicine and a member of the NFXF Scientific Advisory Council. He is a co-discoverer of the FMR1 gene and the repeat expansion mutation that causes fragile X syndrome. He is answering questions about a recent study published in the journal Molecular Psychiatry and an accompanying press release about the paper from Northwestern University’s Feinberg School of Medicine. The headline of the press release claims, "New Fragile X Genes Discovered."

By | 2019-04-24T14:44:13+00:00 Apr 24, 2019|Keeping You Informed, Research|Comments Off on Were New Fragile X Genes Discovered?

Nebraska Launches the ENABLE National Program

The National Fragile X Foundation is pleased to announce that the state of Nebraska has now launched its version of an Achieving A Better Life Experience (ABLE) account. Known as the “ENABLE” national program, it offers enrollment to qualified individuals with disabilities both in Nebraska and throughout the country.

By | 2016-07-08T08:21:20+00:00 Jul 8, 2016|Keeping You Informed|Comments Off on Nebraska Launches the ENABLE National Program

Tennessee Launches ABLE TN Program

The National Fragile X Foundation is excited to announce the State of Tennessee’s launch of the country’s second Achieving a Better Life Experience (ABLE) program. ABLE TN is a national program, offering enrollment to qualified individuals with disabilities both in Tennessee and throughout the country.

By | 2016-06-20T12:44:04+00:00 Jun 20, 2016|Keeping You Informed|Comments Off on Tennessee Launches ABLE TN Program

CDC Awards $1.75 Million Grant to Expand Nationwide Registry for Fragile X Syndrome

A $1.75 million grant to continue research on Fragile X syndrome was given to the Institute for Basic Research (IBR), Willowbrook, by the Centers for Disease Control. Fragile X syndrome is the most common known cause [...]

By | 2015-09-14T13:37:20+00:00 Sep 14, 2015|Advocacy Day, FXCRC and Clinics, In the News, Keeping You Informed|Comments Off on CDC Awards $1.75 Million Grant to Expand Nationwide Registry for Fragile X Syndrome
Load More Posts