The National Fragile X Foundation is saddened to learn of the death of Jarrod Tutko Jr., an 8-year-old boy from Harrisburg, Penn., who was living with Fragile X syndrome. The Fragile X community mourns the loss of one of our own. Our thoughts and prayers go out to his family and friends. Although this is a tragic loss, we would like to share with the public this is an isolated incident and not reflective or representative of the vast majority of families living with Fragile X who daily navigate the challenges of this genetic condition.

We encourage those who are impacted by Fragile X to contact us at the NFXF or your local . Our community stands together to make sure every child living with Fragile X syndrome continues to be successful at school and at home. We provide support and education to families through a vast amount of resources, materials and contacts. We are proud to say most individuals with Fragile X syndrome successfully attend school and live as productive members of their local communities.

To learn more, visit We highly recommend our  and  sections, which feature many of the wonderful people in our community.


Jeffrey Cohen
Interim Executive Director
National Fragile X Foundation