Jayne

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About Jayne Dixon Weber

Jayne is the NFXF director of community education and has been a member of the NFXF team since 2007. She has two adult children, a son with Fragile X syndrome and a daughter. Jayne is the author of Transitioning ‘Special’ Children into Elementary School, co-author of Fragile X Fred, and editor of Children with Fragile X Syndrome: A Parents’ Guide. Jayne likes to read, enjoys photography, and goes for a walk every day.

Let the Awareness Continue!

By |2021-09-30T11:23:43-04:00Aug 13, 2021|Blog|

It looks like in many places we're back to wearing masks, or will be soon. Our family has pulled out all our favorite masks and getting used to them all over again.

Tips for Flying on an Airplane

By |2021-07-12T15:17:01-04:00Jun 30, 2021|Treatment and Intervention|

Traveling with your child with Fragile X syndrome (FXS) on an airplane can be very stressful for both of you. These tips are provided by parents based on their experiences with their own children. Find what works for you, your child, and your family.

Were New Fragile X Genes Discovered?

By |2019-04-24T14:44:13-04:00Apr 24, 2019|Keeping You Informed, Research|

A conversation with David L. Nelson, Ph.D., a Professor at Baylor College of Medicine and a member of the NFXF Scientific Advisory Council. He is a co-discoverer of the FMR1 gene and the repeat expansion mutation that causes fragile X syndrome. He is answering questions about a recent study published in the journal Molecular Psychiatry and an accompanying press release about the paper from Northwestern University’s Feinberg School of Medicine. The headline of the press release claims, "New Fragile X Genes Discovered."

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