Aging in Fragile X Syndrome — Webinar
Dr. Berry-Kravis presents a one hour Q&A about what we’ve learned from the FORWARD data on aging for individuals living with Fragile X syndrome.
Females with FXS: Strategies for Developing Executive Functioning and Social Skills — Webinar
Barb Haas-Givler presents a one-hour Q&A session on resources and strategies for the classroom, home, and community.
Fragile X Premutation Panel Discussion
Panelists Drs. David Hessl, Emily Allen, Deborah Hall and Randi Hagerman share their expertise on the Fragile X premutation at the 18th International Fragile X Conference.
Effective Strategies to Promote and Support Social Skills — Presentation
Jayne Dixon-Weber shares top takeaways from Barbara Haas-Givler's conference presentation on effective strategies to promote and support social skills for individuals with Fragile X syndrome.
Strategies to Improve Executive Functioning for School-Aged Girls with Fragile X Syndrome — Presentation
Jayne Dixon-Weber shares top takeaways from Barbara Haas-Givler's conference presentation strategies for improving executive functioning for girls with Fragile X syndrome
Housing Options for Adults With Fragile X Syndrome — Webinar
Adult services may be limited and difficult to access, so how does a parent deal with that nagging question that keeps them up at night: What will happen when I’m gone?
Diagnosis and Treatment of Fragile X-Associated Tremor Ataxia Syndrome — Webinar
This webinar provides a clinical overview of the diagnosis and treatment of FXTAS, including a summary of its clinical features, treatment options, and information about in-vitro fertilization.
Common Behaviors and Available Treatments Across the Lifespan — Webinar
Presented by Rebecca Shaffer, learn about the signs of emotion dysregulation in Fragile X syndrome and ways to respond, and practical strategies.
Emotion Dysregulation in Fragile X Syndrome — Webinar
Presented by Rebecca Shaffer, learn about the signs of emotion dysregulation in Fragile X syndrome and ways to respond, and practical strategies.
Advancing Our Understanding and Future Treatment of FXTAS Panel Discussion
Experts Deborah Hall, Maureen Leehey, Peter Todd, and Nancy Hertzig discuss the latest in FXTAS research and treatment.
Premutation Carrier Concerns Panel Discussion
Panelists Randi Hagerman, Heather Hipp, Emily Allen, and Marsha Mailick helps answer what it means for your health, your family, and your future at the 17th International Fragile X Conference.
2022 Medications Update — Webinar
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
Premutation Disorders & Conditions — Webinar
Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q&A session following her presentation.
2021 NFXF Webinar Series: Medication Use in Fragile X Syndrome
Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.
NFXF Webinar Series: Collaborate with Us
Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.