Missy Zolecki, Author at National Fragile X Foundation

Fragile X-associated Tremor/Ataxia Syndrome — Webinar

By Missy Zolecki|2023-11-21T13:41:01-05:00Nov 21, 2023|Premutation, Webinar|

Drs. Deborah Hall and Peter Todd joined us for an informative webinar on the topic of Fragile X-associated Tremor/Ataxia syndrome (FXTAS).

Fragile X Advocacy Newsletter – November 2023

By Missy Zolecki|2023-11-15T11:13:02-05:00Nov 14, 2023|Advocacy, Blog|

Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!

Employment Strategies and Successes — Webinar

By Missy Zolecki|2023-11-02T12:20:32-04:00Nov 2, 2023|Adulthood, FXS, Webinar|

In celebration of National Disability Employment Awareness Month, we were joined by a dynamic panel that shared strategies and their individual employment successes! Meaningful employment is important to parents and self-advocates!

Community Event Highlights – Sibling & Self-advocate Network (SSAN)

By Missy Zolecki|2023-10-19T17:56:39-04:00Oct 13, 2023|Blog, Community Support Network, Sibling & Self-Advocate Events|

NFXF Sibling & Self-advocate Network hosted and organized virtual events to bring together the Fragile X community.

Community Event Highlights – NFXF Connecticut Chapter

By Missy Zolecki|2023-10-14T13:25:05-04:00Oct 13, 2023|Blog, Central Connecticut Events, Community Support Network|

NFXF Connecticut Chapter hosted and organized local events to bring together the Fragile X community.

Community Event Highlights – NFXF Western Massachusetts Chapter

By Missy Zolecki|2023-10-14T13:27:35-04:00Oct 13, 2023|Blog, Community Support Network, Western Massachusetts Events|

NFXF Western Massachusetts Chapter hosted and organized local events to bring together the Fragile X community.

Community Event Highlights – NFXF Greater Chicago Chapter

By Missy Zolecki|2023-10-14T13:32:14-04:00Oct 13, 2023|Blog, Community Support Network, Greater Chicago Events|

NFXF Greater Chicago chapter hosted and organized local events to bring together the Fragile X community.

Reproductive Health — Webinar

By Missy Zolecki|2023-10-26T09:43:35-04:00Sep 6, 2023|Premutation, Reproductive Issues, Webinar|

Drs. Heather Hipp and Victoria Wilkins joined us for an informative webinar on the topic of Reproductive health. This is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.

Education Strategies for Success — Webinar

By Missy Zolecki|2023-10-26T09:43:08-04:00Aug 21, 2023|FXS, School and Education, Webinar|

Educational strategies are not just helpful for school-aged children! The one-hour Q&A panel discussion, moderated by Hilary Rosselot, includes panelists with expertise and suggestions to support individuals living with Fragile X throughout the lifespan!