The Greater Chicago Fragile X chapter held their “X Strides with Greater Chicago” event on July 13 in Glenview, Illinois. More than 50 families and caregivers participated including heading to the park splash pad to cool off afterward.
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 9th Annual Bike To X Out Fragile X on Saturday, June 1, 2024, in Des Moines, Iowa.
Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors shares his experience at the 2024 NFXF Advocacy Day.
Join us for the Financially Empowering the Fragile X Community Through ABLE Accounts webinar with Mark Raymond Jr. & John Finch.
Kelly Piacenti joined us for the next topic of the NFXF Webinar Series -10 Basic Financial Steps for Special Needs Caregivers. She shared information to help caregivers get started in preparing for the financial future of their loved one with Fragile X.
The 8th Annual Hadley Corn Hole Championship, organized by the Western Massachusetts Fragile X chapter on March 3, 2024, marked a day of camaraderie, spirited competition, and impactful fundraising.
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
The Greater Chicago Fragile X chapter families gathered on a sunny day in November to support the Brookfield Zoo and its annual Tree Trim event, and to raise awareness for Fragile X families everywhere.
Announcing FY 2024 federal research funding opportunities across six award categories available for all Fragile X-associated conditions and disorders.
Drs. Deborah Barbouth, Emily Allen, Reymundo Lozano, and David Hessl joined us for a one-hour Q & A discussing the Fragile X Premutation.
We hosted an introductory discussion on bequests, wills, trusts, life insurance, and IRA transfers. The panel provided insight on navigating the complexities of wealth transfer, ensuring your legacy is preserved and your loved ones are well cared for.
Drs. Craig Erickson, Laura Hess, Kerrie Chitwood, and Rebecca Shaffer joined us for a one-hour Q & A discussing the benefits of a multidisciplinary team.
Drs. Deborah Hall and Peter Todd joined us for an informative webinar on the topic of Fragile X-associated Tremor/Ataxia syndrome (FXTAS).
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
